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Old 30-06-2017, 08:39 PM #26
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Quote:
Originally Posted by DemolitionRed View Post
Practical Ethics paper about Charlie Guard.
Thanks for this will have a good look through tomorrow

Poor little guy :'(
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Old 03-07-2017, 04:16 PM #27
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Donald J. Trump‏
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*@realDonaldTrump 2h

If we can help little #CharlieGard, as per our friends in the U.K. and the Pope, we would be delighted to do so.
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Old 03-07-2017, 04:21 PM #28
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Quote:
Originally Posted by Vicky. View Post
Ahh I didn't know this part. I do find that part really cruel. I am sure there is a reason behind it, but it just seems awful

https://www.change.org/p/great-ormon...rm=autopublish

Just seen this on facebook which brought me back to this thread then I saw it had already been mentioned by you which I must have skimmed over
Do we know why he is not allowed home to die?
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Old 07-07-2017, 04:21 PM #29
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New Update
From USA Doctors
they claim there is a slight chance his Brain damage will
will reduce a bit
under their Paid Treatment.

http://news.sky.com/story/great-ormo...aring-10940914

They even said they could send Meds to London
that family collected the funds already
let them at least try this special treatment in USA
or UK


Latest:
Great Ormand St hospital applies to Court
new hearing,

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Old 07-07-2017, 09:24 PM #30
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Old 07-07-2017, 09:40 PM #31
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the yanks have been offering to send the medicinema with staff since december to uk
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Old 08-07-2017, 07:37 AM #32
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Oh wouldn't it be fantastic if there is something to significantly improve his quality of life. I will keep my fingers crossed for this brave family.
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Old 08-07-2017, 07:40 AM #33
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Oh wouldn't it be fantastic if there is something to significantly improve his quality of life. I will keep my fingers crossed for this brave family.
I hope they give him a chance with this brillo, where there is life there is hope I say.
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Old 08-07-2017, 08:01 AM #34
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Quote:
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I hope they give him a chance with this brillo, where there is life there is hope I say.
I agree Kaz - he deserves a chance.
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Old 08-07-2017, 09:35 AM #35
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Its good news but why has this come so late in the day?
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Old 08-07-2017, 12:25 PM #36
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Quote:
Originally Posted by DemolitionRed View Post
Its good news but why has this come so late in the day?
I can't see how anything has changed.
It's still an experimental drug, it still won't miraculously cure him.
Just a question of more people piping up so that the doctors that are in charge of his welfare feel that have no option but to get court backing again.
The tragic thing about this situation is that the mother actually believes her baby boy will recover and be able to have a normal life in future, delusion brought on by desperation and her love of Charlie. His parents must be going through hell.
I can't understand why the professionals say he is in pain and yet his mother says he isn't.
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Old 08-07-2017, 12:47 PM #37
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Quote:
Originally Posted by DemolitionRed View Post
Its good news but why has this come so late in the day?
In my opinion, GOSH have realized that this has gotten so big that the political fallout of turning off his life support would be huge. It would be global... pretty much unprecedented, actually. They have been sticking to their guns but at this point, I don't think they had any choice but to cave, even if they still don't believe it to be in the best interests of Charlie.

Which is sort of worrying, in many ways? We've reached the stage where the weight of social media and celebrity can crush expert opinion into submission, and in actual practice rather than just in theory.
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Old 08-07-2017, 01:30 PM #38
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Quote:
Originally Posted by Toy Soldier View Post
In my opinion, GOSH have realized that this has gotten so big that the political fallout of turning off his life support would be huge. It would be global... pretty much unprecedented, actually. They have been sticking to their guns but at this point, I don't think they had any choice but to cave, even if they still don't believe it to be in the best interests of Charlie.

Which is sort of worrying, in many ways? We've reached the stage where the weight of social media and celebrity can crush expert opinion into submission, and in actual practice rather than just in theory.
Completely agree with this, I feel very sad for the little boy, he is kept alive by a machine, he is fed via a tube, Where is the quality of life, I understand the parents frustration but I feel they have lost all perspective now after months of stress, the hospital have kept him alive for months so they can come to terms with letting him go but it's just made it more difficult

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Old 08-07-2017, 01:52 PM #39
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It's an awful situation but I think it's cruel to keep him alive and suffering. There's no miracle cure for what he has and the medicine might keep him alive but what's the point if there's no quality of life?
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Old 08-07-2017, 01:55 PM #40
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Quote:
Originally Posted by Toy Soldier View Post
In my opinion, GOSH have realized that this has gotten so big that the political fallout of turning off his life support would be huge. It would be global... pretty much unprecedented, actually. They have been sticking to their guns but at this point, I don't think they had any choice but to cave, even if they still don't believe it to be in the best interests of Charlie.

Which is sort of worrying, in many ways? We've reached the stage where the weight of social media and celebrity can crush expert opinion into submission, and in actual practice rather than just in theory.
It's been happening for a while sadly, expert opinions will only be listened to if they say what people want to hear.
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Old 08-07-2017, 03:47 PM #41
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Quote:
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It's an awful situation but I think it's cruel to keep him alive and suffering. There's no miracle cure for what he has and the medicine might keep him alive but what's the point if there's no quality of life?
do you advocate terminating the lives of all disabled people you deem to not have a great quality of life? thats what I love about the left, they dont believe in God so they decide to play God themselves in matters of life and death and who they say deserves a chance to live. innocent disabled babies dont usually make the cut
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Old 08-07-2017, 04:04 PM #42
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Quote:
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do you advocate terminating the lives of all disabled people you deem to not have a great quality of life? thats what I love about the left, they dont believe in God so they decide to play God themselves in matters of life and death and who they say deserves a chance to live. innocent disabled babies dont usually make the cut
What is happening now is playing God. If all medical intervention was removed and charlie was left to the will of god and nature he would die. He is only currently breathing because a machine is doing it. If they allow him to be kept alive the chances are he will never communicate and so will never be able to indicate if he is in pain or not. The parents have the worlds sympathy and I wouldn't wish what they are living though on my worst enemy but in my opinion they are fighting this more for their sakes than Charlie's as quite understandably they don't want to lose him
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Old 08-07-2017, 05:46 PM #43
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The fact is you can keep pretty much anyone alive indefinitely with life support. You can keep a heart pumping and lungs inflating even with the brain being completely dead. So you're going into really complex morality if you say that turning off life support in someone who will never recover enough to be OFF of life support, is "killing them". Hospitals would be full of hundreds of thousands of people attached to machines for years after death?
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Old 08-07-2017, 09:38 PM #44
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Quote:
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do you advocate terminating the lives of all disabled people you deem to not have a great quality of life? thats what I love about the left, they dont believe in God so they decide to play God themselves in matters of life and death and who they say deserves a chance to live. innocent disabled babies dont usually make the cut
That's got nothing to do with anything I have said but okay?
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Old 09-07-2017, 02:03 PM #45
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Today
they were outside the Hospital
Parents saying his
brain damage is not so bad
and the new USA oral
treatment can improve that
this is why they have 360,000 signatures
for the child to go for treatment in USA.


http://news.sky.com/story/charlie-ga...tment-10942716


Last edited by arista; 09-07-2017 at 05:02 PM.
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Old 09-07-2017, 11:07 PM #46
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