[Cherie]

Last year we were asked to contribute to a fund raised by friends in Spain to get a little lad to the USA, the amount of money they needed was ALOT, they were lucky in the money needed was donated by a benefactor from Man City, just before Christmas there was a minutes silence for the little lad who passed away despite being taken to the States, most of the time this does not work but I can appreciate miracles do happen, this should be between the parents, the hospital and the court, protesters who know little about what has gone should not be involved, having to involve the police is all kinds of wrong

[chuff me dizzy]

This has just come up on my Facebook IF Alfie doesn't survive what will happen to all this money ?

https://www.justgiving.com/crowdfunding/sarah-evans-791

[Tom4784]

Originally Posted by Kazanne

Science isn't ALWAYS right LT.

Except it is? I feel for the family but they are being irrational and selfish in trying to pretend that their child is 'healthy, undiagnosed and certainly not dying.' None of those things are true.

Too many people in this world use their feelings as their facts.

[Tom4784]

Originally Posted by Toy Soldier

I think this is an inevitable part of the Internet / social media era, it's been happening a lot lately. People have Google, so they can gather a lot of information on various conditions very quickly and form their own strong opinions vs medical professionals. And then they have social media to quickly gather a crowd of supporters, who generally mean well, but don't actually know exactly what they're campaigning for. A lot of people do very little, if any, research of their own before jumping into these sorts of campaigns.

It is understandable that people want to cling onto something as long as possible... But it can I think lead to people holding onto false hope for extended periods of time, which can make coming to terms with these unthinkable things even harder.

I agree with that, A lot of the protesters probably don't even fully understand what they are protesting against.They probably just saw a 'only people with a heart will SHARE THIS!' style post and went in on it without understanding the situation at all.

[jaxie]

It doesn't sound as if there is anything particularly new in this new legal attempt from what has been said in the press so far.

http://www.bbc.co.uk/news/uk-england...yside-43750597

"In December, they said Bambino Gesu would give Alfie a tracheotomy and a percutaneous endoscopic gastrostomy (PEG) to allow him to be fed through his stomach.
But Alder Hey's hospital trust argues that Bambino Gesu has a similar belief that care for Alfie should be palliative."

palliative care
noun
noun: palliative care
care for the terminally ill and their families, especially that provided by an organized health service.

[Toy Soldier]

Originally Posted by jaxie

It doesn't sound as if there is anything particularly new in this new legal attempt from what has been said in the press so far.

http://www.bbc.co.uk/news/uk-england...yside-43750597

"In December, they said Bambino Gesu would give Alfie a tracheotomy and a percutaneous endoscopic gastrostomy (PEG) to allow him to be fed through his stomach.
But Alder Hey's hospital trust argues that Bambino Gesu has a similar belief that care for Alfie should be palliative."

palliative care
noun
noun: palliative care
care for the terminally ill and their families, especially that provided by an organized health service.

So it's ways to keep him "alive" for longer but still in a coma or state of unresponsive wakefulness. Honestly, I think sadly the only reason people do this or consider doing this is denial. It's understandable for family members I guess... but I don't know why anyone else would encourage it, especially any medical staff of any hospital.

[Brillopad]

Originally Posted by Adam.

there is one thing wanting your baby to survive, but to want him to be taken from life support when he wont breathe on his own or to keep the child in pain is not a nice thing at all.

Sometimes in life you have to realise bad things will happened there is no way of stopping them, Id just want the child to be pain free in peace

Come back to us on that one when you have a child! There is so much you can’t possibly understand about being a parent and the feelings involved until you actually become one. This is a perfect example of where experience counts for everything.

[Denver]

Originally Posted by Brillopad

Come back to us on that one when you have a child! There is so much you can’t possibly understand about being a parent and the feelings involved until you actually become one. This is a perfect example of where experience counts for everything.

And how would you know I don't have a child?

[AnnieK]

To be fair to Adam Brillo, I think that even as a parent this is one situation that no one knows how they would deal with it until they are in it (god forbid). I certainly would not want my child to suffer any unnecessary pain and if that meant letting him go, then that is what I would do (would probably go with him if truth be known as he is my only one).

[Cal.]

I’m not sure what’s for the best because I haven’t followed it properly but from what I can gather the parents are clearly hysterical at being told their boy’s life support machine will be switched off and are acting in a very irrational way. Nobody should judge them for their actions at the moment.

[parmnion]

Originally Posted by Dezzy

Except it is? I feel for the family but they are being irrational and selfish in trying to pretend that their child is 'healthy, undiagnosed and certainly not dying.' None of those things are true.

Too many people in this world use their feelings as their facts.

Didnt science tell us diesel cars were better for the environment than petrol cars.

[AnnieK]

Alfie is now a citizen of Italy, family hopeful Alder Hey will now let him go. Some awful scenes outside the hospital today of protesters trying to storm in but the family asked them to remain peaceful.

https://www.bbc.co.uk/news/amp/uk-en...yside-43872678

[Denver]

So the protester's care so much about Alfie but where are the concerns for the other I'll children they are bringing distress

[Amy Jade]

The father is literally telling yobs to go down and riot.

A woman today got stuck outside the hospital because of security shutting the place down, her child was in in the midst of critical surgery. He and all the tramps outside causing others anguish are a disgrace.

[Shaun]

How sad that a baby's life has to end among such a sea of awful mob mentality (and behaviour).

[Marsh.]

I hope they make it to Italy.

[Vicky.]

Mr Evans encouraged people to come to the hospital to stand outside and "tell them to release our son" in a "quiet protest".

Yeah right. Because large crowds of people on SJW type missions always tend to be 'peaceful' right...encouraging a mob outside a hospital is ****.

'Tell them' too, because medical professionals know nothing about whats best for the cvhild...

Looks like. from the little I know of this, another Charlie Gard story tbh. I cannot imagine ever being in such a situation, but I would like to think I would do the least selfish thing and let the child go instead of prolonging the inevitable

[AnnieK]

The hospital continued with removing life support. Alfie was not expected to survive for more than 3 minutes off the ventilator but 9 hours on and he is still sustaining life. A very sad story of a very poorly boy but due to social media it has been whipped into such a frenzy. I don't know what I would do in this situation but posting on FB I think would be the last thing on my mind

[Kizzy]

OMG....ok I'm in tears!!

Come on alfie

'The father of Alfie Evans has claimed doctors were left “gobsmacked” after the terminally ill toddler’s life support was withdrawn but he continued to survive.

Tom Evans said it was obvious his son was breathing unassisted “within a few minutes” of life support being withdrawn on Monday night.

A spokeswoman for the hospital said they could not confirm or deny his account as they did not comment on individual cases.'

https://www.independent.co.uk/news/u...-a8319401.html

[Denver]

They might sue the hospital for murder are they serious?

[Kizzy]

Of course they are serious, the boy is alive if they are refusing to treat yes, now he is off life support it's a whole new ball game.

[Denver]

The courts said to stop all treatment.

He should be arrested for organising protests and stopping families seeing their I'll children

[arista]

Originally Posted by Marsh.

I hope they make it to Italy.

No
the Hospital will not let him leave
as he is too ill,

[Marsh.]

Originally Posted by arista

No
the Hospital will not let him leave
as he is too ill,

Shush.

[arista]

Originally Posted by Marsh.

Shush.

Also the Barrister has been changed.