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Hello everybody :) thanks for making this thread Caitlin, it's lovely to come back to!
So yeah, my boy has been given the all clear.. They can't detect any leukaemia at all, even using the most sensitive, molecular testing. I can't even begin to explain how it felt to receive the good news... It was either going to be this or a bone marrow transplant which would have meant relocating again to Glasgow for the treatment, then 6 months at home with no visitors and no leaving the house.. Relieved is an understatement. Obviously, he'll be monitored closely for the next 5 years, but for now I can say my son kicked cancers arse.. hard! :love: |
brilliant to see you online!
So happy for you! :love: :love: :love: |
:lovedup: lee you babe
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what have you been doing since you found out? Is Samuel back at school?
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The schools are in holiday here at the moment but the nurse that was here the other day said that she'll arrange a meeting at the school as soon as they go back and make plans for him to return a few hours a day at first.. He's still got his Hickman line in his chest and his feeding tube in his nose, so gym and playtime etc will be a nono at first, plus his immune system is still up and down so the teachers have to be told how to recognise the first signs of infection and to phone us immediately.. All a bit daunting really, but it's another step towards normality :hugesmile: |
How much school has he missed? Has he had friends around for visits & stuff? :love:
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Amazing news. This is beautiful. Congratulations.:spin:
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Lee :love:
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Hi lee so pleased to catch you on, hugs to your brave boy and you :hug: xx
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Thanks kizzy.. Nice to be back with a nice light heart :)
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This will be the best Christmas ever! Can't actually wait.. I've kept a positive vision in my head this whole time of Samuel sitting at Xmas dinner with a wee party hat on, sitting laughing with us :love:
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Thanks Ammi :) thankfully, he had a teacher for an hour a day whilst in hospital so he's hopefully not fallen behind that much.
They're going to do another bone marrow test in 2 months and if it's still clear, they'll remove his Hickman, so hopefully it'll be gone by Christmas! I just want him back to normal as quickly as possible.. His hair and eyelashes are back.. His hair is a different colour, but he looks like a healthy child now rather than a cancer patient! :love: |
You know how I feel about this news and about you Lee, I'm so happy for you and you give me strength. You're extremely admirable and strong :) xx
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Amazing news Lee....must be so nice to all be together again at home. Samuel is amazing :lovedup: Was so happy when I heard so god only knows how you all felt.....
Sending lots of love to you all xx |
So happy for y'all :love:
These coming months are going to be so good for you! <3 |
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Amazing!
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This is such good news Lee. I can't even imagine how hard the last few months have been for you and your family. I'm so happy for you all :hug:
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So pleased for you Lee and your family,it must be a huge weight from your shoulders,and the little guy can be free from all that chemo etc.:hug:Doing a happy dance for you:elephant::dance:xx
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