I don't really agree at all with govts or doctors having the final say. I've had too many shoddy doctors. Doctors are not always right and sometimes they just add to the confusion/misery and can even be the cause of the initial problem. I lost 2 decades of my life to bad medical advice and malpractice, so I can't say that I can go on their word alone... hospitals and insurance have their own interests.. they'll give people some say, sure, but when it goes a way they don't like, they shut it down... the only ones that really can know what is best for the child is the parents. This is of course assuming in this case, they are good parents, and they're not simply just trying to get funding from the public for some other reason... doubtful, but it definitely happens...
Because
we don't know all the facts, we don't know the level of care he has received, if he has received the finest care possible, if they have dropped the ball someplace, if they had turned every stone, if maybe the same medical team that is saying it's too late to save him maybe didn't make other bumbling mistakes along the way that would make the parents reasonably question their judgement ... Frankly, we don't know anything, if even they understand all that has been said to them. Even still, I think other people getting involved with protests and such on social media, it's all bizarre for me... the only reason this is even worthwhile to petition because it is an institution who is making this decision and thus the political issue... who is dictating when to pull life support.
I disagree with this as well and this is one reason why if US were to have "universal" healthcare, I'd want the system to still remain private as it is now, but with much stronger regulations (if a completely free and transparent market is not politically/ethically feasible here)...
I'll give example of why that happened yesterday. I had to make an emergency trip out of town to see my grandfather in the nursing home because he went off the rails after they adjusted his medication. This will be the 6th time they'd jacked with his medications and it causing his schizophrenia to return in full force... so he was calling my grandmother and other family members saying they were attempting to kill him and asking them to call police. He asked my grandmother if she had asked them to order the hit... hence me going out, because I'm the only one he has never been suspicious of. (Probably because I'm the baby of the family)
Anyway, why does that keep happening? Why do they keep changing his medications when all it does is lead to episodes (he has 0 issues otherwise and is completely normal). Because the doctors who are examining him are not private physicians. They are on call by the nursing home and work for the state. They work for Medicare... and
Medicare is the one who wants them to jack with his meds because it'll reduce their costs and the doctors work for Medicare. His labs are normal. He gets a bit sleepy every now and then after medication time, but other than that, no side effects. He leads a completely normal life.
He has been on these medications for 15-20 years. There is absolutely no reason to change them, as he is 100% better when off them. Symptom free. No person would even know he has a psych disorder... so for them to keep jacking with his meds is not only inhumane (can you
imagine being terrified someone is going to hurt you?), but it puts the family through significant stress as well. It also adds a financial burden because he is out of town as the only nursing home we could find to take him in (because he's a psych patient) is in Navasota... and we won't move him anyway because he likes it there, he trusts the staff and is very comfortable in that location.
So I realized, I would never want the state or doctors having
final say on my care. To be quite frank here, even the most educated human beings on planet can be absolute bumbling morons when it comes to common sense. Being book smart, highly educated, well-researched does not make doctors immune from having terrible judgement and it absolutely doesn't make them incapable of bias. In fact, those people are much more likely to
assume their own superiority, which would inflame issues with bias and prejudice in some cases. These sorts of errors and conflicts of interest happen everyday, even in the private industry. The irony, it was *gasp*
the internet */gasp* that led my situation getting figured out and resolving my own medical issues... no help from doctors whatsoever who ignored my concerns at every turn, and in one case made me so sick, I couldn't be trusted to drive, much less run a stove for more than a year because I would turn the stove top on, black out and then be in the other room and have forgotten I'd even gotten up to start cooking myself a meal...
TDLR: They should let the child go to Italy. Intelligence isn't always everything. The parents are not going to be able to rest until they've literally tried everything they can... even if it's .00001% chance, a good parent knows when it is time. Moreover, if they're religious and it's a religious hospital taking them in, if it does come to it the child is taken off life support, then at least they will be in a very supportive community who won't make them feel patronized and ridiculous. But you, me, TiBB, Theresa May, Donald Trump have no business interfering in their decision of what's best for their child...
But if he were
brain dead, then yes, that would be a completely different story... read about
Jahi McMath. That happened very recently and her parents still have her on life support... if you are curious to see that extreme.