Quote:
Originally Posted by bitontheslide
there are very few people that sail through life without meeting some serious hurdles along the way and dealing with them as best they can. It's just life
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I try to stay thankful really. On the one hand, not to be too woeful, but it does occasionally strike me that I'll likely be a 24/7 carer for the rest of my ife - or rather, until I'm too old enough to do it, at which point I'll just have to worry about my daughter being in a care system that's frankly horrendous and often abusive. The current plan is to continue increasing earnings until we can at least afford a regular full time private carer for respite/to allow us both to go out to work, as there is somewhat an eventual "ceiling" on my earnings whilst I can only work from home.
On the other hand I'm acutely aware that my kids are both great and (touch wood!) my older daughter at approaching-15 is thus far angelic really
, and also I have a great relationship and we're both doing well... when I know that there are plenty of people out there in the same situation (full time caring responsibilities for disabled children) who are on benefits with a fraction of our income, or totally alone without family help OR a partner to split the load. So all things considered, today and the foreseeable future is hard but good.
I might not have said the same a few weeks back when both me and my wife were horribly ill with some gastro virus, but she was much worse than me so I had to carry on with the essentials (as mentioned, we have zero help), and I nearly passed out in the cheese section of ASDA. A real low
. Resilience was lacking a little that day!