[DemolitionRed]

@Kizzy. She was previously diagnosed with fibromyalgia and therefore, any symptoms pointing to FMD were put down as a FM related.

@Oliver. There are plenty of heart specialists for common heart conditions but if you're unfortunate enough to have a rare condition, like you and your family or my sister and niece, then finding a heart specialist who has anything more than a basic understanding is equally rare. You really do have to become an expert of your own illness.

The reason my sister is on the medication she's on at the moment is because her heart specialist in Leeds is treating her the same way he treats people with more common conditions. Hopefully when she see's this SCAD specialist (He's the only one in the country) the treatment for her condition won't be as debilitating as the one she's presently on.

One of the things she did and I'm not sure if you've done this Oliver, was research her condition and find a forum where other people have the same thing. She found an American site and gained so much good information and support from people who have been through the same as herself. It seems the Americans really understand what this condition is and how to treat it.