[Sticks]

Portsmouth Council are making the child a ward of court, so luckily he will be back in the UK ASAP and that will be the end of this nonsense about proton beam therapy. A clinician has already said it is not the appropriate treatment for this child.

[anne666]

Originally Posted by Sticks

Portsmouth Council are making the child a ward of court, so luckily he will be back in the UK ASAP and that will be the end of this nonsense about proton beam therapy. A clinician has already said it is not the appropriate treatment for this child.

How dare they!!! That bloody hospital has a lot to answer for here and I hope they are held to account. Since when has it become a crime or immoral for parents to seek out treatment they HOPE may benefit their own child? As for "a Clinician has said", he is not to be questioned? Since when and who is he, God? Try putting yourself in the parent's shoes. They refuse to give up hope and good for them. We aren't all nannied into submission, thank goodness.

[AnnieK]

Originally Posted by Sticks

Portsmouth Council are making the child a ward of court, so luckily he will be back in the UK ASAP and that will be the end of this nonsense about proton beam therapy. A clinician has already said it is not the appropriate treatment for this child.

And I suppose you think it's right also for the child to be kept separate from his parents during whatever time he has left. A child who has known love from his parents and family now faces the prospect of losing his battle for life and the last faces he is yo see are faceless doctors or court appointed social workers. That, to me, is child cruelty. I also assume you have never heard of medical professionals getting things wrong or covering their arses? They are not infallible just because they have a medical degree....

[anne666]

Originally Posted by AnnieK

And I suppose you think it's right also for the child to be kept separate from his parents during whatever time he has left. A child who has known love from his parents and family now faces the prospect of losing his battle for life and the last faces he is yo see are faceless doctors or court appointed social workers. That, to me, is child cruelty. I also assume you have never heard of medical professionals getting things wrong or covering their arses? They are not infallible just because they have a medical degree....

I agree with that too! This is a catalogue of the most strange behaviour, all stemming from that hospital! What is their agenda? They were only yelling about the fact that the batteries would have run out on his feeder, well they were wrong. What else is going on here? That poor child needs his parents by his side as much as is humanly possible. His brother was trying to visit him today? Does anyone know if he succeeded?

[Ammi]

Originally Posted by Sticks

Portsmouth Council are making the child a ward of court, so luckily he will be back in the UK ASAP and that will be the end of this nonsense about proton beam therapy. A clinician has already said it is not the appropriate treatment for this child.

..maybe Sticks, that’s been said because it can’t be offered to him whereas it is available and has some proven success in other countries..?...it is in effect the same treatment that he’s having but directing the radiation more to the tumlour so there are far lower chances of permanent significant brain damage through damage to the surrounding cells and a chance for a far greater life quality...and it’s especially effective in children with brain tumours..it is a recognised treatment by Cancer Research who already send patients overseas for the treatment and it will be offered in the UK from 2018..but the machines are expensive and bulky according to Dr Hilary on This Morning who also said...’ it is very effective. It is similar to conventional radiotherapy, except for the fact that you get less scatter.
"The proton beams are positively charged particles. They are focus on the tumour and cause less collateral damage to structures around the tumour, so the complication rate is less.
‘’So in effect it could be more cost effective."



..maybe this is something that his own surgeons or doctors don’t agree is necessary because the treatment is so similar to what they would themselves give him but without transporting him or the expense of it etc....but that doesn’t mean it’s not going to make a huge difference in his future quality of life and there is no one who loves him more, no one who places such importance on that quality of his life, no one who would have his interests at heart more and no one who will be thinking of his future life more than his parents and I think they've showed that...if his parents are allowed to take him for the treatment, if they can raise the money quickly enough then there doesn’t seem to be anything to ‘lose’ at all with this but possibly everything to ‘gain’ for Ashya..who is the only person they’re thinking about..and they’re not thinking about whether it’s available here under the NHS but just that this could make all the difference to him and they love him enough to want to try that and they love him enough to want life quality for him..to increase the chances of that....which parent wouldn’t..

[Northern Monkey]

Originally Posted by Ammi

..maybe Sticks, that’s been said because it can’t be offered to him whereas it is available and has some proven success in other countries..?...it is in effect the same treatment that he’s having but directing the radiation more to the tumlour so there are far lower chances of permanent significant brain damage through damage to the surrounding cells and a chance for a far greater life quality...and it’s especially effective in children with brain tumours..it is a recognised treatment by Cancer Research who already send patients overseas for the treatment and it will be offered in the UK from 2018..but the machines are expensive and bulky according to Dr Hilary on This Morning who also said...’ it is very effective. It is similar to conventional radiotherapy, except for the fact that you get less scatter.
"The proton beams are positively charged particles. They are focus on the tumour and cause less collateral damage to structures around the tumour, so the complication rate is less.
‘’So in effect it could be more cost effective."



..maybe this is something that his own surgeons or doctors don’t agree is necessary because the treatment is so similar to what they would themselves give him but without transporting him or the expense of it etc....but that doesn’t mean it’s not going to make a huge difference in his future quality of life and there is no one who loves him more, no one who places such importance on that quality of his life, no one who would have his interests at heart more and no one who will be thinking of his future life more than his parents and I think they've showed that...if his parents are allowed to take him for the treatment, if they can raise the money quickly enough then there doesn’t seem to be anything to ‘lose’ at all with this but possibly everything to ‘gain’ for Ashya..who is the only person they’re thinking about..and they’re not thinking about whether it’s available here under the NHS but just that this could make all the difference to him and they love him enough to want to try that and they love him enough to want life quality for him..to increase the chances of that....which parent wouldn’t..

Very well said His parents care for him more than anyone else in the world.They should'nt be punished for trying to save their child.