[daniel-lewis-1985]

Originally Posted by Kizzy

My sister has it and I'm having tests too, It will prob be an end to beer swilling for you sorry, you can have cider or wine though.

Do you mind me asking what your symptoms are?

Mine has been severe weight loss (from 11 st 9 to 9 st.5) which sucks.
The usual running to the toilet extravanganza.
Mouth ulcers.
sickness.
Cramps.
Acid reflux.

I immediately thought the dreaded aids (probably overdramatic but Philadelphia is my fav film so its like one of my worst fears!) but thank god I get tested every 6 months and im std free!

It does sound like I must be allergic to certain foods perhaps that cause flare ups but I don't understand how this can come on in my late twenties.

[Kizzy]

Originally Posted by daniel-lewis-1985

Do you mind me asking what your symptoms are?

Mine has been severe weight loss (from 11 st 9 to 9 st.5) which sucks.
The usual running to the toilet extravanganza.
Mouth ulcers.
sickness.
Cramps.
Acid reflux.

I immediately thought the dreaded aids (probably overdramatic but Philadelphia is my fav film so its like one of my worst fears!) but thank god I get tested every 6 months and im std free!

It does sound like I must be allergic to certain foods perhaps that cause flare ups but I don't understand how this can come on in my late twenties.

Look familiar? it's an indicator of coeliac, and your weight loss is due to you not absorbing any nutrients from your food, you'll prob get some iron, vit D and calcium tabs from your doc to boost you as soo as you get a diagnosis. You should take a multi vit now even though with the bowel trouble it doesn't seem like you're absorbing much , bet you feel rubbish?
Did they take a biopsy when they dis the endoscopy? That will confirm, having a helicobactor test might be wise too.
It's an auto immune condition and can crop up at any time so don't worry, it will mean a complete diet overhaul though you'll be surprised where the pesky gluten crops up. There are lots of information sites and forums for info so don't worry.
I have really bad acid reflux and was on omeprazole now something else, I had helicobactor which was treated an had an endoscopy last fri with biopsy...

Just to add gluten is in oats, rye, barley, wheat and other grain so bread and pasta will make you feel really bad, don't drop any food groups though until you've finished your tests.

[daniel-lewis-1985]

Originally Posted by Kizzy

Look familiar? it's an indicator of coeliac, and your weight loss is due to you not absorbing any nutrients from your food, you'll prob get some iron, vit D and calcium tabs from your doc to boost you as soo as you get a diagnosis. You should take a multi vit now even though with the bowel trouble it doesn't seem like you're absorbing much , bet you feel rubbish?
Did they take a biopsy when they dis the endoscopy? That will confirm, having a helicobactor test might be wise too.
It's an auto immune condition and can crop up at any time so don't worry, it will mean a complete diet overhaul though you'll be surprised where the pesky gluten crops up. There are lots of information sites and forums for info so don't worry.
I have really bad acid reflux and was on omeprazole now something else, I had helicobactor which was treated an had an endoscopy last fri with biopsy...

Yup that's it! Us and our kissable mouths eh lol. Yeah don't feel my usual self like sleeping more which is odd as im the biggest insomniac ever.

Yeah they took biopsies from below and above it was not a pleasant experience! See ive allways been told multi vitamins are bad even by the gp theres so much conflicting information.

Think you've got it bang on though with everything you're describing, even if it is this and I have to change my diet atleast I know what it is finally.

Did you get sedated for the endoscopy? I just had the mouth spray which literally made me feel like I had a 12 foot long tongue. Is this like a lifelong diagnosis though or can it go away seeing as fast as its come on?

[Kizzy]

Originally Posted by daniel-lewis-1985

Yup that's it! Us and our kissable mouths eh lol. Yeah don't feel my usual self like sleeping more which is odd as im the biggest insomniac ever.

Yeah they took biopsies from below and above it was not a pleasant experience! See ive allways been told multi vitamins are bad even by the gp theres so much conflicting information.

Think you've got it bang on though with everything you're describing, even if it is this and I have to change my diet atleast I know what it is finally.

Did you get sedated for the endoscopy? I just had the mouth spray which literally made me feel like I had a 12 foot long tongue. Is this like a lifelong diagnosis though or can it go away seeing as fast as its come on?

I was sedated yes maybe do that next time? you'll need to take someone to help you get home though. You're not fully out of it but I thought 45 mins was 5 mins so you're in an altered state
Good quality vits in liquid form rather than tabs could give you a better chance of absorbing some goodness to save you basically running on empty I would've thought? Have you had bloods to check levels? my D3 was 23 (significantly deficient) so was put on 20,000mg for the next 8 weeks! :/
Your test was inconclusive? that's annoying still waiting on mine.
If we have it it's for life, my sis says it's only a pain when socialising as most places can't guarantee anything on the menu as gluten free except salad ( no dressing) or jacket potato.
You'll have to learn a new way of cooking your favourite dishes, no more jars and packet sauces or ready meals... It's not all bad, you might turn into a gluten free Jamie Oliver