[DemolitionRed]

Originally Posted by Toy Soldier

So it's a bit like ME / Chronic Fatigue Syndrome? There's a lot of debate around how "real" that is but I think it's sort of the same thing - it's a collection of symptoms with no defined cause or treatment. So I guess the possibilities are that it's one cause that they haven't figured out yet, OR it simply is a large variety of things but that all present in the same way. I'm sure it is very real, though, at school a friend of mine's older sister (also a friend of MY older sister...) was diagnosed with ME and she was definitely not very well at all.

I think there's also some debate over whether it's a sort of low-level, ongoing version of PVFS (post-viral fatigue syndrome) and triggered by a virus... which I KNOW is very real, as I had acute PVFS after a pretty minor viral throat infection 2 winters ago. It lasted about a month and it was just bizarre, like no other illness I've ever had... nearly fainted on the way to work one morning and thought I was having a stroke, followed by a month of just constant exhaustion, insomnia (but dropping in and out of sleep all day and night), and every single night like clockwork I'd get a raging fever for 5 / 6 hours and I'd just lie in bed pouring buckets of sweat. Totally horrendous. Then one day it just disappeared as suddenly as it started . I got the distinct impression that the doctors just don't really understand it at all and it's a "wait and see what happens I guess" situation .

Again, there is no specific tests for ME. All they can go on is symptoms. Many people who were diagnosed with ME later went on to be diagnosed with MS and a proportion of people with FM are later being diagnosed with Lupus or MS.

They are starting to go down the line of viruses, especially post-hospital viruses causing ME and FM but like you say, they don't really understand what's going on. What they do know is, people with FM and ME are more likely to have hypermobility syndrome, suffer migraines and get nasal allergies. There are clearly links to these diseases but as yet, nobody knows why.

I'm glad you got better. It must of been quite frightening at the time, especially when we have google at our fingertips and can look up all the awful things it could be. Sounds like you just had a nasty virus that you managed to shake off.