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Old 04-07-2017, 10:41 AM #26
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All the "treatment" will do is prolong his suffering. He wouldn't have any quality of life. Doctors, surgeons and the courts have all decided this. It's time to let him go.
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Old 04-07-2017, 10:41 AM #27
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Except for his own citizens. Thousands of Americans die because they can't afford medical treatment.
he's reducing the payments
thousands died of abuse neglect and corruption under labour
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Old 04-07-2017, 10:44 AM #28
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All the "treatment" will do is prolong his suffering. He wouldn't have any quality of life. Doctors, surgeons and the courts have all decided this. It's time to let him go.
if a person wants to kill themselves that's up to them but to kill a baby by refusing his only chance and turning his life machine off is wrong. you don't know how long he will survive or what medical advances will come in the time his life is prolonged. how dare anyone tell someone else they haven't got the right to live.

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Old 04-07-2017, 12:53 PM #29
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Trump has no power to overrule an English nor a European court. This is just him using this tragic story to big himself up.
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Old 04-07-2017, 12:59 PM #30
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whether that's true or not liv. doesn't really matter. the offer is there for treatment the question is whether it's worth the pain for poor charlie
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Old 04-07-2017, 01:07 PM #31
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whether that's true or not liv. doesn't really matter. the offer is there for treatment the question is whether it's worth the pain for poor charlie
The offer is not there because an English court has ruled on it. I would suggest Trump has enough sh1t to deal with without sticking his schnoz into this.

God love the little boy...if there was any other way... but all the evidence has said otherwise. Keeping him alive is cruel. If I had an animal that was suffering and beyond help I wouldn't be allowed to keep it alive for my own sake. It looks to me like that's what's happening here.
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Old 04-07-2017, 01:13 PM #32
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he's reducing the payments
thousands died of abuse neglect and corruption under labour
Psst Truthy, Labour isn't a thing in US politics.
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Old 04-07-2017, 01:49 PM #33
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Is it because they are paying?... I don't see him stepping in to aid anyone who has a child needing treatment in the US or the UK who has no funding or insurance.
Much as I would love to see a miracle here I don't see him as anything other than a narcissist using poor Charlie to curry favour.
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Old 04-07-2017, 03:53 PM #34
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Quote:
Originally Posted by bitontheslide View Post
I get really angry when prominent figures who know absolutely zero about the situation stick their beaks in

They are not helping, they are perpetuating both the little lads pain and the parents false hope.

The boy is in constant pain, not able to move, hear or even cry. Really, people should think of what they are putting this baby through. I don't think any one of us would want to endure that 24 hours a day, 7 days a week

The american treatment cannot cure him, it can only reduce some of the SYMPTOMS, nothing more
I agree.

Its been reported that Charlie is much further along with this illness than any children treated thus far in America. At best, he may be able to come off his life support machine and breath on his own but he would still remain in a persistent vegetative state.
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Old 04-07-2017, 11:50 PM #35
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Old 05-07-2017, 03:36 AM #36
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I think it's worth mentioning that members of Trumps administration spoke with the parents before he made the tweet. It wasn't just done out of the Blue.
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Old 05-07-2017, 06:32 AM #37
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I think it's worth mentioning that members of Trumps administration spoke with the parents before he made the tweet. It wasn't just done out of the Blue.
I suspect that either Trump or some PR person thought this stunt would be a way to distract from what the Republicans are doing to vulnerable people in the USA.

22 June 2017: Trump’s Budget Cuts Deeply Into Medicaid and Anti-Poverty Efforts

22 June: Disabled protesters dragged away by cops

For Trump (and the Whitehouse) to do **** like this and then pretend that he cares about the Charlie Gard is nothing more than a cynical attempt to manipulate the public; it's being done in an effort to 'humanise' someone who doesn't give a damn about ordinary people.
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Old 05-07-2017, 06:47 AM #38
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Arista can you please scale down the size of those images you keep posting. I often use my mobile to look on here and when those images are so big, it takes ages to load a thread and then it messes with the scroll through.
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Old 05-07-2017, 09:40 AM #39
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Quote:
Originally Posted by DemolitionRed View Post
I agree.

Its been reported that Charlie is much further along with this illness than any children treated thus far in America. At best, he may be able to come off his life support machine and breath on his own but he would still remain in a persistent vegetative state.
Also the cases of other children's treatment are misleading. No child with Charlie's illness has been treated in the US.

https://www.judiciary.gov.uk/wp-cont...20170411-1.pdf

14
Charlie’s parents have sadly, but bravely, acknowledged and accepted that the quality of life that Charlie has at present is not worth sustaining. He can only breathe through a ventilator and, although they believe that he has a sleep/wake cycle and can recognise them and react to them when they are close, they realise that he cannot go on as he is, lying in bed, unable to move, fed through a tube, breathing through a machine.

16
It seemed at the outset of this hearing that there might have been a lone voice
in the USA that was offering what had been described in some reports as
“pioneering treatment”. Understandably, Charlie’s parents have grasped that
possibility. They have done all that they could possibly have done. They have
very publicly raised funds. What parents would not do the same? But I have
to say, having heard the evidence, that this case has never been about
affordability, but about whether there is anything to be done for Charlie.

17
At one stage, Great Ormond Street Hospital got as far as deciding to apply for ethical permission to attempt nucleoside therapy here - a treatment that has never been used on patients with this form of MDDS - but, by the time that decision had been made, Charlie’s condition had greatly worsened and the view of all here was that his epileptic encephalopathy was such that his brain damage was severe and irreversible that treatment was potentially painful but incapable of achieving anything positive for him.

18
I was aware that I was to hear evidence from the doctor1 in the USA who was, reportedly, offering what had been referred to as “pioneering treatment”. Before he gave evidence, I encouraged the treating consultant at Great Ormond Street Hospital to speak with him which he was able and willing to do. I am truly grateful to these experts for the time that they have given to this case.
The outcome of that discussion is illuminating. The doctor in the USA said as
follows:
“Seeing the documents this morning has been very helpful. I can
understand the opinions that he is so severely affected by
encephalopathy that any attempt at therapy would be futile. I agree that
it is very unlikely that he will improve with that therapy. It is unlikely.”

19
However, the US doctor made it clear that, were Charlie in the United States,
he would treat him if the parents so desired and could pay for it. As I have
already said, funding in this case is not an issue. The US doctor also
confirmed during this telephone conversation that he had never treated with
nucleoside therapy anyone who had encephalopathy. Therefore, he was unable to indicate from any scientific basis whether a patient with encephalopathy would respond positively.

20
Charlie suffers from the RRM2B mutation of MDDS. No one in the world has
ever treated this form of MDDS with nucleoside therapy, although patients
with a different strain, TK2, have received nucleoside therapy with some
recorded benefit. In mouse models, the benefit to TK2 patients was put at
about 4% of life expectancy. There is no evidence that nucleoside therapy can cross the blood/brain barrier which it must do to treat RRM2B, although the US doctor expressed the hope that it might cross that barrier.

21
There is unanimity among the experts from whom I have heard that nucleoside therapy cannot reverse structural brain damage. I dare say that medical science may benefit objectively from the experiment, but experimentation cannot be in Charlie’s best interests unless there is a prospect of benefit for him.
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Old 05-07-2017, 11:25 AM #40
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Quote:
Originally Posted by DemolitionRed View Post
Arista can you please scale down the size of those images you keep posting. I often use my mobile to look on here and when those images are so big, it takes ages to load a thread and then it messes with the scroll through.

Sorry DR
I do not get time
BBC and Sky site
both do papers large
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Old 05-07-2017, 11:35 AM #41
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Confusing. Its a well known fact that Trump deliberately cut off Healthcare for his sick nephew yet now he wants to be a hero.

http://www.dailymail.co.uk/news/arti...sick-baby.html
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Old 05-07-2017, 01:16 PM #42
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Sorry DR
I do not get time
BBC and Sky site
both do papers large
Carry on then arista, but keep in mind, those of us who often use our mobiles to look at threads, won't easily be able to look at the threads you post pictures to.
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Old 05-07-2017, 02:01 PM #43
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What a wonderful man. I want his Presidential cock in my heart
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Old 05-07-2017, 02:40 PM #44
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Quote:
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Confusing. Its a well known fact that Trump deliberately cut off Healthcare for his sick nephew yet now he wants to be a hero.

http://www.dailymail.co.uk/news/arti...sick-baby.html
Two day's of searching for some dirt, and all you could come up with is sibling rivalry.

I bet you was gutted it was the Daily Mail?

Stay off the CNN Girth, it'll send you as loopy as them.
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Old 05-07-2017, 03:24 PM #45
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Worth a shot innit!
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Old 05-07-2017, 05:01 PM #46
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Quote:
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Two day's of searching for some dirt, and all you could come up with is sibling rivalry.

I bet you was gutted it was the Daily Mail?

Stay off the CNN Girth, it'll send you as loopy as them.
Was expecting you say this was old news. David Cay Johnson has been telling this story for ages definitely since Trump was running. I just thought it was time it was posted. Dont post on here much these days, not always up with the latest posts, but dont know why you think I was looking for stories mate? This ones pretty easy to find and, as I said in my other post, also pretty much common knowledge.

http://www.independent.co.uk/news/wo...-a6795131.html

http://www.motherjones.com/politics/...-medical-care/

http://www.newyorker.com/news/john-c...s-donald-trump

https://www.theatlantic.com/politics...streak/501554/

https://www.nytimes.com/2016/01/03/u...g.html?mcubz=0



Incidentally, Trump hasn't refuted any of the claims in Johnsons book

Check out co-author/author of 'art of the deal' Tony Scwartz too . Both have told eerily true stories of what Trump would be like in Office.
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Old 05-07-2017, 07:04 PM #47
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Good but horrifying video Girth. It certainly confirms a lack of empathy and a lot of sociopathic tendencies.
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Old 05-07-2017, 07:20 PM #48
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Its a long vid and I dont think Cay Johnson comes across all that well at times during the vid but he's told those same stories on a number of shows before the election about his personal experiences with Trump.
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Old 05-07-2017, 11:27 PM #49
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Australian prime minister roasts Trump: 'We are winning so much'

While I'm posting Trump related news that I'd forgot about. Oz PM Turnbull isnt really known for his sense of humour but here he is finding much to take the p*ss out of with the Donald.

'I got this Russian guy'
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Old 07-07-2017, 08:32 AM #50
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Apparently there is hope in the US as a little boy with the same condition as Charlie has reached his 6th birthday,where there is life there is hope and surely he deserves a chance.
While the have the same condition, I'm pretty sure Charlie's physical state and brain have been damaged more than the boy in the USA.
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