Quote:
Originally Posted by mizzy25
Hi yes I do have it and was told it has nothing to do with your diet, which I don't think is right like as if I eat too much crap im bad.I think myself its brought on by stress but I did find out a very old uncle of mine had it.I wouldn't wish it on anyone not even my worst enemy. before I knew what was wrong with me I went through 3 months of hell, I couldn't eat as it would go straight through me, the pains were horrendous, I even left a job after 2 weeks as I couldn't get off the toilet. @ 1st they thought it was IBS but a verfy nice dr insisted on sending me for a colonscopy @ the time they cud have stuck a red hot iron up my backside as I just wanted to know wtf was wrong and could anything be done? Im on medication for life for it which seems to control it along with taking 1 codeine a day but if I get any pains or the runs I take more codeine which seems to do the trick. I go to the hospital every 6 months for regular check ups but if im ever to have a very bad flare up I have to ring them straight away. @ 1st they put me on steroids for 8 weeks as its inflammation, then they put me on a few diff kinds of meds until they found the right one. Before I got diagnosed with it id never heard of it, but its surprising how many people have it as when in remission you can like me lead a perfectly normal life. The guy who plays cain dingle in emmerdale has got it.
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Sorry mizzy didn't see this my sis had tests for it too, after testing she was diagnosed with coeliac, your symptoms sound horrific does the toilet issues mean you don't metabolise food well? She was real thin and they said it was stopping her from absorbing any nutrients in her food

had to have a bone scan and had early onset osteoporosis, luckily by taking high strength calcium she'll be fine.
Have you had to change your diet much?