Quote:
Originally Posted by DemolitionRed
My sister has a heart condition called 'Spontaneous Coronary Artery Dissection' (SCAD) and the only symptoms is often sudden death. She went into complete heart failure almost a year ago but was fortunately in the right place at the right time. ECG's that were being carried out just before her heart stopped showed up nothing.
Its a rare but hereditary condition or rather 'Fibromuscular dysplasia' the thing that often leads to SCAD is hereditary and so her children and myself had to go through testing. Her youngest daughter has now been diagnosed with FMD. The rest of us are fine.
The hardest thing for her is finding heart specialists who understand this disease. I'm taking her to a leading SCAD specialist in Leicester in a couple of weeks time and hopefully he will take her off all the medication that's making her feel so ill.
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Thank god your sister was in the right place when it happened, it's a wretch that so few doctors know about her condition though :/
Her story is similar to my family's - my dad had a heart attack, but luckiily my stepmum knows CPR and kept him going until the paramedics arrived, and then all of us had to have the test, but as it's a rare condition we had to explain it to our GPs in order to get referrals ha... but it sounds like she has it worse, as we don't have to take medication or anything...