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Senior Member
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Join Date: Jan 2015
Posts: 6,175
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Senior Member
Join Date: Jan 2015
Posts: 6,175
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My sister has a heart condition called 'Spontaneous Coronary Artery Dissection' (SCAD) and the only symptoms is often sudden death. She went into complete heart failure almost a year ago but was fortunately in the right place at the right time. ECG's that were being carried out just before her heart stopped showed up nothing.
Its a rare but hereditary condition or rather 'Fibromuscular dysplasia' the thing that often leads to SCAD is hereditary and so her children and myself had to go through testing. Her youngest daughter has now been diagnosed with FMD. The rest of us are fine.
The hardest thing for her is finding heart specialists who understand this disease. I'm taking her to a leading SCAD specialist in Leicester in a couple of weeks time and hopefully he will take her off all the medication that's making her feel so ill.
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