[bbfan1991]

I don't, age is just a number to me and I am determined to live life to the full.

[Josy]

Not really.

No point worrying about something that can't be changed.

[Lee.]

I don't worry about getting older.. But I do worry that I've not seen most if the things I want to see before I die!

[smudgie]

Not so much about getting older, more about health issues as I am getting older.

[Niamh.]

I worry about Ben getting older

[Benjamin]

Originally Posted by Niamh.

I worry about Ben getting older

[Ammi]

..no, I'm cool with it, I've liked every age I've been...

[King Gizzard]

I worry about 24 for some reason

[Livia]

Considering the alternative.... no.

[Black Dagger]

I want to be older and settle down already and ****, I'm like an 30 year old trapped inside an 18 year old's body

[Ammi]

Originally Posted by Black Dagger

I want to be older and settle down already and ****, I'm like an 30 year old trapped inside an 18 year old's body

...it's better than being 18yrs trapped inside a 30yr old's body though Lucas...

[Tozzie]

I try not to think about it too much but these days I'm reminded a lot of my deteriorating health, the mind is willing and the body's not, I wouldn't say I actively worry about it though. I do tend to worry about my husband more than myself as he has developed diabetes and other health issues and I cannot contemplate life without him!

[Verbal]

As someone with life long health issues it does concern me. As a child I was lucky enough to have my parents around to basically do anything that I couldn't. As you get older, not so much.

[Ammi]

Originally Posted by CynicalHermit

As someone with life long health issues it does concern me. As a child I was lucky enough to have my parents around to basically do anything that I couldn't. As you get older, not so much.

..do you manage ok by yourself atm..?...

[AnnieK]

Originally Posted by CynicalHermit

As someone with life long health issues it does concern me. As a child I was lucky enough to have my parents around to basically do anything that I couldn't. As you get older, not so much.

Sorry to hear about your health issues. Do you get help?

[Verbal]

Originally Posted by Ammi

..do you manage ok by yourself atm..?...

Originally Posted by anniek76

Sorry to hear about your health issues. Do you get help?

For the most part I get by ok. There are certain things I am unable to do, something as mundane as changing a light bulb is out of the question as I have no balance whatsoever. Its quite humiliating when you have to call a relative to simply screw a lightbulb in, i've gone weeks without a light in my bathroom before now...that was fun

I'm not able to lift and carry things that are much bigger than a bin bag either, so for example if I wanted a new desk. Getting rid of the current one and getting a new one up my stairs is impossible unless someone helps, which to be honest nobody apart from my father is ever willing to do, and he's a busy man anyway so I don't really bother asking. I get no official help, don't think i'm entitled to it.

[hijaxers]

Originally Posted by CynicalHermit

For the most part I get by ok. There are certain things I am unable to do, something as mundane as changing a light bulb is out of the question as I have no balance whatsoever. Its quite humiliating when you have to call a relative to simply screw a lightbulb in, i've gone weeks without a light in my bathroom before now...that was fun

I'm not able to lift and carry things that are much bigger than a bin bag either, so for example if I wanted a new desk. Getting rid of the current one and getting a new one up my stairs is impossible unless someone helps, which to be honest nobody apart from my father is ever willing to do, and he's a busy man anyway so I don't really bother asking. I get no official help, don't think i'm entitled to it.

Do you not have something like WECIL in your area ? My daughter works for them locally and she has helped a lot of people i know with these sort of problems - WECIL is a registered charity in England and Wales - which is where you live i think, have a look on line for them - I think you probably qualify for help< they have recently been challenged with finding funding but comic relief etc.. support the charity a lot. Please let me know if there is anything i can ask my daughter for you - she's great for getting you in touch with the right people.

[hijaxers]

It just happens we got no choice ! we hear horrendous stories every day and just think ourselves lucky ! We just gotta get on with it and hope we don't become one of those poor elderly people failed so badly by the health service in this country , even more so if relatives are few on the ground.

[Verbal]

Originally Posted by hijaxers

Do you not have something like WECIL in your area ? My daughter works for them locally and she has helped a lot of people i know with these sort of problems - WECIL is a registered charity in England and Wales - which is where you live i think, have a look on line for them - I think you probably qualify for help< they have recently been challenged with finding funding but comic relief etc.. support the charity a lot. Please let me know if there is anything i can ask my daughter for you - she's great for getting you in touch with the right people.

Thank you for that, that's very kind. I had never heard of them. Looking on http://www.wecil.co.uk/ though it seems to be focused on Bristol and the surrounding area, i'm in Wales. I am a member of ASBAH (Association for Spina Bifida and Hydrocephalus) which obviously, is what I was born with. They have like Area Managers who are supposed to keep check on the people in their areas.
When I first joined the guy was great, he came to see me when I joined and would call me at least once a fortnight to see if he could help with anything. He left, and apart from a few emails I have had no contact with his replacement.
I was in my 30s before I had even heard of ASBAH, and that was only as a result of a chance meeting with an old school friend, who has the same health issues. Unless you cause a fuss and chase and chase, and know who to chase, nobody seems to really give a toss.

[Natalie.]

I worry I'll run out of time

[mizzy25]

This may sound bad but I worry, well I wouldn't say worry but I don't like looking older, a few of my friends say I don't look old but I think I do, then I look @ some people and think they look much older than me. I also never thought of myself as vain if this makes sense, I hardly ever look in the mirror unless its to brush my hair, put make up on or whatever I wouldn't dream of looking unless I had reason too that way I don't see the wrinkles lol