[Angelika]

Apparently the parents were told by the medical staff that there was nothing more they could do for the child and that his condition was terminal. I can't really understand why there is such an outcry in the media and a huge manhunt ..........what will arresting the parents achieve beyond criminalizing grieving parents and family members.

I couldn't believe the story about the battery, that was meant to fire up emotion in the public. Tube feeding was always done per Ryles Tube and a syringe. No batteries needed.
The child is dying and he should be allowed to do so peacefully at home with his loving and supportive family.

This looks like a very vindictive move by the authorities and I do not approve. We all are entitled to a dignified death surrounded by loved ones.

[Kizzy]

The family were facing radiotherapy according to the vid, another child with medulloblastoma Neon Roberts mother wanted proton therapy but it isn't available here on the NHS.

'The Imperial Cancer Research and the Cancer Research Campaign (now both merged into UK Cancer Research) in response to the Act, said that they would probably be in breach of the Act since they discuss cancer treatment all the time. However because they pushed through £millions per year in funding of research they were going to ignore the consequences – which have never been pressed…
Over the next 30 years or so, with the introduction of the NHS, the government’s responsibilities under the Cancer Act 1939 were replaced. The majority of the Act’s clauses were replaced. Finally the only clause left was one that prevented open discussion of treatments by interested lay people. What was originally an Act in the name of Public Health and with the intention of curing people… now is only used to shut people up…'

http://sallyrobertsourstory.wordpres...roberts-story/

[Jamesy]

I'm surprised such a large manhunt came out of this. I don't quite understand what the authorities reason would be for that, as they haven't committed a crime, and parents have the final say on what happens with the care of their child.

When an adult refuses medical treatment there are no laws against it. If you refuse it or leave the hospital then there's nothing the hospital or the authorities can do.

Unless there are some rules regarding children with illnesses in healthcare that I'm unaware of.

[arista]

So much is more clear now
he went to Spain to sell his Spanish property fast
to fund the Prot.B meds treatment.

He said he could not tell Southampton Hosp.
as they would put a court order to stop that.
Nasty NHS.

[Sticks]

Sorry but those parents should be charged with child endangerment and that boy bought back to the UK.

He should not get proton beam quack therapy because the UK doctors said he should not have it and we should trust their more informed decisions. The doctors here have more experience of treating cancer than those criminally irresponsible parents, and they deemed it inappropriate which is why they refused to allow it.

Lets hope there is a permanent order banning them for life from contacting all their children to make an example of them.

Children need to be protected from those who advocate quack alternative therapies which have not been proven.

[Angelika]

Originally Posted by Sticks

Sorry but those parents should be charged with child endangerment and that boy bought back to the UK.

He should not get proton beam quack therapy because the UK doctors said he should not have it and we should trust their more informed decisions. The doctors here have more experience of treating cancer than those criminally irresponsible parents, and they deemed it inappropriate which is why they refused to allow it.

Lets hope there is a permanent order banning them for life from contacting all their children to make an example of them.

Children need to be protected from those who advocate quack alternative therapies which have not been proven.

You sound like you were part of Aysher's medical team with such intimate knowledge of his care. Produce your evidence showing Proton Beam Therapy to be quackery, lets examine it!

Till then, I believe the parents have a right to choose and the medical specialist should have referred the child for a second opinion as soon as it was requested by the parents.

[Kizzy]

Or.... they don't want us knowing that there are treatments they're too expensive.

It's not quackery http://www.christie.nhs.uk/about-the...m-therapy.aspx

[arista]

Originally Posted by Kizzy

Or.... they don't want us knowing that there are treatments they're too expensive.

It's not quackery http://www.christie.nhs.uk/about-the...m-therapy.aspx

Kizzy the dad wants to sell his 2nd home there
of course he Locked Away now

[Kizzy]

Originally Posted by arista

Kizzy the dad wants to sell his 2nd home there
of course he Locked Away now

Yes I'm aware of that but not all parents with sick kids have 2nd homes to flog do they?

http://www.itv.com/news/story/2014-0...ound-in-spain/

[Sticks]

The UK medical expert on the Radio 4 news said it was not the appropriate treatment for that condition, which makes it quack therapyif it were to be so used for that condition.

If Southampton PCT refused it and threatened child protection orders if the father kept harassing them about it, then they had good and excellent reasons to refuse it and to carry one with proven treatments, even if such treatments were to be just palliative until nature took it's course.

We should be on the side of the medical profession here, who know a lot more than this father about it.

As for that YouTube video, it should be taken down as it is justifying criminal action just like they, I hope, take down those videos from suicide bombers.

[Kizzy]

Originally Posted by Sticks

The UK medical expert on the Radio 4 news said it was not the appropriate treatment for that condition, which makes it quack therapyif it were to be so used for that condition.

If Southampton PCT refused it and threatened child protection orders if the father kept harassing them about it, then they had good and excellent reasons to refuse it and to carry one with proven treatments, even if such treatments were to be just palliative until nature took it's course.

We should be on the side of the medical profession here, who know a lot more than this father about it.

As for that YouTube video, it should be taken down as it is justifying criminal action just like they, I hope, take down those videos from suicide bombers.

It is used and has previously been used for this condition, the family wished to fund the treatment privately I don't feel that effectively giving a child a death sentence is an acceptable level of care though so we don't agree here clearly.

[user104658]

Originally Posted by Sticks

The UK medical expert on the Radio 4 news said it was not the appropriate treatment for that condition, which makes it quack therapyif it were to be so used for that condition.

If Southampton PCT refused it and threatened child protection orders if the father kept harassing them about it, then they had good and excellent reasons to refuse it and to carry one with proven treatments, even if such treatments were to be just palliative until nature took it's course.

We should be on the side of the medical profession here, who know a lot more than this father about it.

As for that YouTube video, it should be taken down as it is justifying criminal action just like they, I hope, take down those videos from suicide bombers.

I've been directly (myself and immediate family) on the receiving end of the NHS "professionals" getting it COMPLETELY WRONG, on major occasions, no less than 7 times in the last 5 years. They DON'T always "know better"... In fact, half of the time they have absolutely no idea what they're on about. I have very little trust in them now, and dread to think what might happen if one of my children got ill and I disagreed with one of their "experts".

[Angelika]

Originally Posted by Toy Soldier

I've been directly (myself and immediate family) on the receiving end of the NHS "professionals" getting it COMPLETELY WRONG, on major occasions, no less than 7 times in the last 5 years. They DON'T always "know better"... In fact, half of the time they have absolutely no idea what they're on about. I have very little trust in them now, and dread to think what might happen if one of my children got ill and I disagreed with one of their "experts".

And I agree with you wholeheartedly!

[Sticks]

There was obviously a good reason why the doctors at Southampton believed it should not be used and considered the child protection order when the father kept insisting.

Those doctors know more about cancer treatment of children than these criminally irresponsible parents, or you and I.

We need to trust the judgement of proper experts.

[Angelika]

Originally Posted by Sticks

There was obviously a good reason why the doctors at Southampton believed it should not be used and considered the child protection order when the father kept insisting.

Those doctors know more about cancer treatment of children than these criminally irresponsible parents, or you and I.

We need to trust the judgement of proper experts.

No, we need to question the treatment offered and demand proper answers.
In time the doctors concerned may be brought before a peer review.

[user104658]

Originally Posted by Sticks

There was obviously a good reason why the doctors at Southampton believed it should not be used and considered the child protection order when the father kept insisting.

Those doctors know more about cancer treatment of children than these criminally irresponsible parents, or you and I.

We need to trust the judgement of proper experts.

Most likely scenario? High cost of treatment vs low chance of success, so they would rather "make him comfortable" and let him die. No parent in their right mind would accept that.

[Angelika]

Originally Posted by Sticks

There was obviously a good reason why the doctors at Southampton believed it should not be used and considered the child protection order when the father kept insisting.

Those doctors know more about cancer treatment of children than these criminally irresponsible parents, or you and I.

We need to trust the judgement of proper experts.

Patients and parents of patients don't have to blindly accept the judgement of one medical practitioner - the medical practitioner is obliged to refer a patient for a second opinion when requested. It's not up to the doctor to decide his opinion is the only opinion worthy of notice.

There will be investigations in time and the NHS and staff including doctors will have to account for their actions and the stories given to the police regarding the patient and his his family.

[Kizzy]

I agree with you in theory but when you see others being treated successfully in other countries I can't blame parents for seeking treatment if they have the means to do so.

If the alternative is death then where's the harm?

[Sticks]

What happens in other countries is not relevant here. For a treatment to be condone here it must be approved of by the National Institute for Clinical Excellence

Then it needs to be approved of by the PCT. Let us not forget that there are other patients and the NHS is not a bottomless pit. Hard choices have to be made for the good of the whole

[Kizzy]

Originally Posted by Sticks

What happens in other countries is not relevant here. For a treatment to be condone here it must be approved of by the National Institute for Clinical Excellence

Then it needs to be approved of by the PCT. Let us not forget that there are other patients and the NHS is not a bottomless pit. Hard choices have to be made for the good of the whole

Which comes back to my original point that it could simply be a funding issue.
It is relevant as the focus is was there a treatment available... There is.

Where it is is irrelevant, it isn't unusual for people to be sent away for treatment.

this practice has been approved and used previously, I posted a link to a facility currently in use.

[user104658]

Originally Posted by Sticks

What happens in other countries is not relevant here. For a treatment to be condone here it must be approved of by the National Institute for Clinical Excellence

Then it needs to be approved of by the PCT. Let us not forget that there are other patients and the NHS is not a bottomless pit. Hard choices have to be made for the good of the whole

Are you a parent? I'm guessing not. Because if you think I would allow one if my daughters to die "for the good of the whole", you are massively mistaken. I would watch all of you burn. ****... I would light the match.

[AnnieK]

Originally Posted by Toy Soldier

Are you a parent? I'm guessing not. Because if you think I would allow one if my daughters to die "for the good of the whole", you are massively mistaken. I would watch all of you burn. ****... I would light the match.

Me also for my son....

[Benjamin]

Originally Posted by Sticks

What happens in other countries is not relevant here. For a treatment to be condone here it must be approved of by the National Institute for Clinical Excellence

Then it needs to be approved of by the PCT. Let us not forget that there are other patients and the NHS is not a bottomless pit. Hard choices have to be made for the good of the whole

Yes the NHS isn't a bottomless pit, hence why many treatments are not available on it, even if they are successful treatments. But you are right about choices, hard choices do have to be made, and the parents have a choice about how they want to treat their child and they have chosen something that the NHS does not and will not offer. They are in a horrid situation, they are acting to try and save their child in any means they can because they do not want to lose him and time is of the essence. That does not make them criminals and you should be ashamed at yourself and your absolutely disgusting viewpoint on this matter.

[arista]

Originally Posted by Benjamin

Yes the NHS isn't a bottomless pit, hence why many treatments are not available on it, even if they are successful treatments. But you are right about choices, hard choices do have to be made, and the parents have a choice about how they want to treat their child and they have chosen something that the NHS does not and will not offer. They are in a horrid situation, they are acting to try and save their child in any means they can because they do not want to lose him and time is of the essence. That does not make them criminals and you should be ashamed at yourself and your absolutely disgusting viewpoint on this matter.

Yes That Police Boss
has it all wrong
and he is standing by his actions


No Neglect
at all.
They just want a better treatment than the NHS can give

[Kizzy]

Youtube video