[Kizzy]

Originally Posted by Toy Soldier

This is very much the same as the last similar case though; that time doctors in America, pioneering treatments, making huge promises... It all turned out to be insubstantial.

That was one instance, you can't gauge all attempts the same due to one failed treatment.
The point is they and others are willing to try.

[Denver]

Will he even survive the long journey to another country? its not like they are moving him up the road

[Candy Annie Cane]

The parents have been granted a fresh appeal in Court on Monday

[Kizzy]

Originally Posted by AnnieK

The parents have been granted a fresh appeal in Court on Monday

Great news

[Cherry Christmas]

Last year we were asked to contribute to a fund raised by friends in Spain to get a little lad to the USA, the amount of money they needed was ALOT, they were lucky in the money needed was donated by a benefactor from Man City, just before Christmas there was a minutes silence for the little lad who passed away despite being taken to the States, most of the time this does not work but I can appreciate miracles do happen, this should be between the parents, the hospital and the court, protesters who know little about what has gone should not be involved, having to involve the police is all kinds of wrong

[chuff me dizzy]

This has just come up on my Facebook IF Alfie doesn't survive what will happen to all this money ?

https://www.justgiving.com/crowdfunding/sarah-evans-791

[jaxie]

It doesn't sound as if there is anything particularly new in this new legal attempt from what has been said in the press so far.

http://www.bbc.co.uk/news/uk-england...yside-43750597

"In December, they said Bambino Gesu would give Alfie a tracheotomy and a percutaneous endoscopic gastrostomy (PEG) to allow him to be fed through his stomach.
But Alder Hey's hospital trust argues that Bambino Gesu has a similar belief that care for Alfie should be palliative."

palliative care
noun
noun: palliative care
care for the terminally ill and their families, especially that provided by an organized health service.

[user104658]

Originally Posted by jaxie

It doesn't sound as if there is anything particularly new in this new legal attempt from what has been said in the press so far.

http://www.bbc.co.uk/news/uk-england...yside-43750597

"In December, they said Bambino Gesu would give Alfie a tracheotomy and a percutaneous endoscopic gastrostomy (PEG) to allow him to be fed through his stomach.
But Alder Hey's hospital trust argues that Bambino Gesu has a similar belief that care for Alfie should be palliative."

palliative care
noun
noun: palliative care
care for the terminally ill and their families, especially that provided by an organized health service.

So it's ways to keep him "alive" for longer but still in a coma or state of unresponsive wakefulness. Honestly, I think sadly the only reason people do this or consider doing this is denial. It's understandable for family members I guess... but I don't know why anyone else would encourage it, especially any medical staff of any hospital.

[Candy Annie Cane]

To be fair to Adam Brillo, I think that even as a parent this is one situation that no one knows how they would deal with it until they are in it (god forbid). I certainly would not want my child to suffer any unnecessary pain and if that meant letting him go, then that is what I would do (would probably go with him if truth be known as he is my only one).

[Cal.]

I’m not sure what’s for the best because I haven’t followed it properly but from what I can gather the parents are clearly hysterical at being told their boy’s life support machine will be switched off and are acting in a very irrational way. Nobody should judge them for their actions at the moment.

[Candy Annie Cane]

Alfie is now a citizen of Italy, family hopeful Alder Hey will now let him go. Some awful scenes outside the hospital today of protesters trying to storm in but the family asked them to remain peaceful.

https://www.bbc.co.uk/news/amp/uk-en...yside-43872678

[Denver]

So the protester's care so much about Alfie but where are the concerns for the other I'll children they are bringing distress

[Amy Jade]

The father is literally telling yobs to go down and riot.

A woman today got stuck outside the hospital because of security shutting the place down, her child was in in the midst of critical surgery. He and all the tramps outside causing others anguish are a disgrace.

[Shaun]

How sad that a baby's life has to end among such a sea of awful mob mentality (and behaviour).

[Marsh.]

I hope they make it to Italy.

[arista]

Originally Posted by Marsh.

I hope they make it to Italy.

No
the Hospital will not let him leave
as he is too ill,

[Marsh.]

Originally Posted by arista

No
the Hospital will not let him leave
as he is too ill,

Shush.

[arista]

Originally Posted by Marsh.

Shush.

Also the Barrister has been changed.

[Yuki Maru Hoshi]

I don't really agree at all with govts or doctors having the final say. I've had too many shoddy doctors. Doctors are not always right and sometimes they just add to the confusion/misery and can even be the cause of the initial problem. I lost 2 decades of my life to bad medical advice and malpractice, so I can't say that I can go on their word alone... hospitals and insurance have their own interests.. they'll give people some say, sure, but when it goes a way they don't like, they shut it down... the only ones that really can know what is best for the child is the parents. This is of course assuming in this case, they are good parents, and they're not simply just trying to get funding from the public for some other reason... doubtful, but it definitely happens...

Because we don't know all the facts, we don't know the level of care he has received, if he has received the finest care possible, if they have dropped the ball someplace, if they had turned every stone, if maybe the same medical team that is saying it's too late to save him maybe didn't make other bumbling mistakes along the way that would make the parents reasonably question their judgement ... Frankly, we don't know anything, if even they understand all that has been said to them. Even still, I think other people getting involved with protests and such on social media, it's all bizarre for me... the only reason this is even worthwhile to petition because it is an institution who is making this decision and thus the political issue... who is dictating when to pull life support.

I disagree with this as well and this is one reason why if US were to have "universal" healthcare, I'd want the system to still remain private as it is now, but with much stronger regulations (if a completely free and transparent market is not politically/ethically feasible here)...

I'll give example of why that happened yesterday. I had to make an emergency trip out of town to see my grandfather in the nursing home because he went off the rails after they adjusted his medication. This will be the 6th time they'd jacked with his medications and it causing his schizophrenia to return in full force... so he was calling my grandmother and other family members saying they were attempting to kill him and asking them to call police. He asked my grandmother if she had asked them to order the hit... hence me going out, because I'm the only one he has never been suspicious of. (Probably because I'm the baby of the family)

Anyway, why does that keep happening? Why do they keep changing his medications when all it does is lead to episodes (he has 0 issues otherwise and is completely normal). Because the doctors who are examining him are not private physicians. They are on call by the nursing home and work for the state. They work for Medicare... and Medicare is the one who wants them to jack with his meds because it'll reduce their costs and the doctors work for Medicare. His labs are normal. He gets a bit sleepy every now and then after medication time, but other than that, no side effects. He leads a completely normal life.

He has been on these medications for 15-20 years. There is absolutely no reason to change them, as he is 100% better when off them. Symptom free. No person would even know he has a psych disorder... so for them to keep jacking with his meds is not only inhumane (can you imagine being terrified someone is going to hurt you?), but it puts the family through significant stress as well. It also adds a financial burden because he is out of town as the only nursing home we could find to take him in (because he's a psych patient) is in Navasota... and we won't move him anyway because he likes it there, he trusts the staff and is very comfortable in that location.

So I realized, I would never want the state or doctors having final say on my care. To be quite frank here, even the most educated human beings on planet can be absolute bumbling morons when it comes to common sense. Being book smart, highly educated, well-researched does not make doctors immune from having terrible judgement and it absolutely doesn't make them incapable of bias. In fact, those people are much more likely to assume their own superiority, which would inflame issues with bias and prejudice in some cases. These sorts of errors and conflicts of interest happen everyday, even in the private industry. The irony, it was *gasp* the internet */gasp* that led my situation getting figured out and resolving my own medical issues... no help from doctors whatsoever who ignored my concerns at every turn, and in one case made me so sick, I couldn't be trusted to drive, much less run a stove for more than a year because I would turn the stove top on, black out and then be in the other room and have forgotten I'd even gotten up to start cooking myself a meal...

TDLR: They should let the child go to Italy. Intelligence isn't always everything. The parents are not going to be able to rest until they've literally tried everything they can... even if it's .00001% chance, a good parent knows when it is time. Moreover, if they're religious and it's a religious hospital taking them in, if it does come to it the child is taken off life support, then at least they will be in a very supportive community who won't make them feel patronized and ridiculous. But you, me, TiBB, Theresa May, Donald Trump have no business interfering in their decision of what's best for their child...

But if he were brain dead, then yes, that would be a completely different story... read about Jahi McMath. That happened very recently and her parents still have her on life support... if you are curious to see that extreme.

[Vicky.]

Mr Evans encouraged people to come to the hospital to stand outside and "tell them to release our son" in a "quiet protest".

Yeah right. Because large crowds of people on SJW type missions always tend to be 'peaceful' right...encouraging a mob outside a hospital is ****.

'Tell them' too, because medical professionals know nothing about whats best for the cvhild...

Looks like. from the little I know of this, another Charlie Gard story tbh. I cannot imagine ever being in such a situation, but I would like to think I would do the least selfish thing and let the child go instead of prolonging the inevitable

[Candy Annie Cane]

The hospital continued with removing life support. Alfie was not expected to survive for more than 3 minutes off the ventilator but 9 hours on and he is still sustaining life. A very sad story of a very poorly boy but due to social media it has been whipped into such a frenzy. I don't know what I would do in this situation but posting on FB I think would be the last thing on my mind

[Kizzy]

OMG....ok I'm in tears!!

Come on alfie

'The father of Alfie Evans has claimed doctors were left “gobsmacked” after the terminally ill toddler’s life support was withdrawn but he continued to survive.

Tom Evans said it was obvious his son was breathing unassisted “within a few minutes” of life support being withdrawn on Monday night.

A spokeswoman for the hospital said they could not confirm or deny his account as they did not comment on individual cases.'

https://www.independent.co.uk/news/u...-a8319401.html

[Denver]

They might sue the hospital for murder are they serious?

[jaxie]

Originally Posted by Adam.

They might sue the hospital for murder are they serious?

According to a report today the father has had three doctors filed with the papers for a private prosecution for conspiracy to murder.

[Denver]

Originally Posted by jaxie

According to a report today the father has had three doctors filed with the papers for a private prosecution for conspiracy to murder.

He has no grounds to stand on,