[user104658]

I think this is an inevitable part of the Internet / social media era, it's been happening a lot lately. People have Google, so they can gather a lot of information on various conditions very quickly and form their own strong opinions vs medical professionals. And then they have social media to quickly gather a crowd of supporters, who generally mean well, but don't actually know exactly what they're campaigning for. A lot of people do very little, if any, research of their own before jumping into these sorts of campaigns.

It is understandable that people want to cling onto something as long as possible... But it can I think lead to people holding onto false hope for extended periods of time, which can make coming to terms with these unthinkable things even harder.