[Me. I Am Salman]

[arista]

Time was wasted fighting this.

[Livia]

More money spent on litigation (she's not funding this pantomime herself, the taxpayer is), more doctors' time wasted giving evidence.

[MusicMan]

So the courts have overruled the parent regarding potentially life-saving treatment...

Could this now open a can of worms regarding blood transfusions for the children of Jehovah's Witnesses?

[Cherie]

I've no problem with tax payers money being spent on this, given that we pay for new identities for child killers, legal aid for murderers to appeal. As a Mum you do what you think is best for your child and most (not all) will go to the end of the earth to get it. It is a no win situation whoever your sympathy's lie with. Lets hope Neon continues to do well with no loss of quality of life. Your's is an interesting point Music Man.

[Livia]

Originally Posted by MusicMan

So the courts have overruled the parent regarding potentially life-saving treatment...

Could this now open a can of worms regarding blood transfusions for the children of Jehovah's Witnesses?

The courts already get involved in cases where someone is refusing life-saving treatment on religious grounds for their next of kin, be they Jehovah's Witnesses or other religious group. The hospital would seek an injunction in the same way this case has gone forward.

[Niamh.]

Originally Posted by MusicMan

So the courts have overruled the parent regarding potentially life-saving treatment...

Could this now open a can of worms regarding blood transfusions for the children of Jehovah's Witnesses?

Seems the boys father wanted him to have the treatment though

[Kizzy]

What an interesting point, could a parent refuse treatment for a child on religious grounds?
How cynical and debase is it to reduce something this ethically and morally impossible to it's monetary value?
How can we as a civilised society not understand her need to examine every avenue before agreeing to this intrusive potentially destructive treatment?

[Kizzy]

http://adc.bmj.com/content/90/7/715.full

''the child’s interests are paramount. The court did stress, however, that although the child’s welfare is paramount, consideration would be given to parental beliefs, particularly when the situation was not imminently life threatening''

[arista]

The mother
was just on Daybreak ITV1HD
She now claims other nations do not do this treatment
So another Appeal is starting today
to stop next weeks due treatment.

But has this boy got time for this?

[Livia]

Originally Posted by arista

The mother
was just on Daybreak ITV1HD
She now claims other nations do not do this treatment
So another Appeal is starting today
to stop next weeks due treatment.

But has this boy got time for this?

I saw the interview. She did herself no favours at all, I've rarely seen a woman so deep in denial. I also thought it was pretty low that she took the opportunity to have a dig at the boy's father, "I've always been Neon's principal carer, why he's getting involved now I don't know". Maybe because he's the child's father and has as much right to take part in the decision making as she does?

[Kizzy]

I saw it too, there is something to be said for using other treatments, being spoken down to by TV presenters and made to look like some new age loon by the mail and the telegraph is not going to make radiotherapy any less deadly.

[Livia]

The mother grasping at straws and scrabbling round to find an "expert witness" who actually agrees with her is not going to make cancer any less deadly either.

I hope the little boy is okay... but time really is running out for him while his mother crusades in her own little spotlight.

[arista]

Originally Posted by Livia

The mother grasping at straws and scrabbling round to find an "expert witness" who actually agrees with her is not going to make cancer any less deadly either.

I hope the little boy is okay... but time really is running out for him while his mother crusades in her own little spotlight.

Yes thats what is Wrong here
she stands Alone.


and Her Husband matters in this.

[Kizzy]

Originally Posted by arista

Yes thats what is Wrong here
she stands Alone.


and Her Husband matters in this.

Of course he does, I can't help but think that they would have had a better chance if they were united on this, however he has as much right to say what treatment his son recieves.

[Kizzy]

Nope, she is looking for someone who is willing to perform the same surgery they do abroad here thats the difference.
Here it's radiotherapy or nothing not much of a choice is it?

I think they should ignore the urgent medical advice given by the doctors that have all the facts, and have been treating him throughout, and just debate this for another couple of months.

[Kizzy]

Originally Posted by Jesus.H.Christ

I think they should ignore the urgent medical advice given by the doctors that have all the facts, and have been treating him throughout, and just debate this for another couple of months.

They removed a brain tumour, the 1cm shadow could be a residual tumour or scar tissue...
They didn't know either way for long enough, maybe they still don't and the radiotherapy is precautionary?... Would you like to see your son go through this on a 'what if?'

[Niamh.]

Originally Posted by Kizzy

They removed a brain tumour, the 1cm shadow could be a residual tumour or scar tissue...
They didn't know either way for long enough, maybe they still don't and the radiotherapy is precautionary?... Would you like to see your son go through this on a 'what if?'

I would like my son to go there through it on "Make sure it's all gone" basis.

Originally Posted by Kizzy

They removed a brain tumour, the 1cm shadow could be a residual tumour or scar tissue...
They didn't know either way for long enough, maybe they still don't and the radiotherapy is precautionary?... Would you like to see your son go through this on a 'what if?'

Originally Posted by Niamh.

I would like my son to go there through it on "Make sure it's all gone" basis.

[Kizzy]

Originally Posted by Niamh.

I would like my son to go there through it on "Make sure it's all gone" basis.

Me too! residual tumour...what even is that? they left a bit in.....why would they do that, you would think they would want to take all of it surely?

[Nedusa]

So if I have this story correct , the Mother wants her son to have no life quality altering treatments for his cancer. She wants him to have treatments that do not alter his quality of life or stop him being able to produce sperm when he reaches puberty.

Even though the chances of him surviving are now drastically reduced due to his mothers insistence on him NOT having more conventional treatments that could extend his life.

Does anyone else see an element of selfishness in his mothers actions ? , she seems to be resigned to the fact her son will die very prematurely but his personality will be intact and if he were to make it to puberty he may be able to provide healthy sperm for a possible grandchild.

I am struggling to understand this women's motives...!!!

[Ammi]

Originally Posted by Nedusa

So if I have this story correct , the Mother wants her son to have no life quality altering treatments for his cancer. She wants him to have treatments that do not alter his quality of life or stop him being able to produce sperm when he reaches puberty.

Even though the chances of him surviving are now drastically reduced due to his mothers insistence on him NOT having more conventional treatments that could extend his life.

Does anyone else see an element of selfishness in his mothers actions ? , she seems to be resigned to the fact her son will die very prematurely but his personality will be intact and if he were to make it to puberty he may be able to provide healthy sperm for a possible grandchild.

I am struggling to understand this women's motives...!!!

..I don't think it's that simplistic...there are dangers in radiation on the brain with children....it may effect him in lots of ways so I don't dismiss her concerns..however, they're invalid if he has no life at all..she thinks alternative treatments would not only work but create a better chance of less future problems...neither the father or the courts agree with her and they have details of those alternatives which we haven't...so I assume his best chances are radiation....but we still shouldn't dismiss her fears and concerns..she is his mother and presumably only wants what 'she thinks' is best....

[lippyzippy]

Originally Posted by Ammi

..I don't think it's that simplistic...there are dangers in radiation on the brain with children....it may effect him in lots of ways so I don't dismiss her concerns..however, they're invalid if he has no life at all..she thinks alternative treatments would not only work but create a better chance of less future problems...neither the father or the courts agree with her and they have details of those alternatives which we haven't...so I assume his best chances are radiation....but we still shouldn't dismiss her fears and concerns..she is his mother and presumably only wants what 'she thinks' is best....

so running away is the best course of action?

[Kizzy]

There is a documentary on Neon Roberts and his mother this evening at 9pm on channel 4.

http://www.channel4.com/programmes/y...mum-on-the-run

on c5 news now