[Vicky.]

Originally Posted by DemolitionRed

Sorry you're having to go through this but I honestly think you need to push your doctors to be more pro-active. GP's are basically ear nose and throat specialists who rely on specialists for anything more complex.

It used to be that you went to your GP, who sent you to a specialist, who went through a process of elimination before sending you on to a specialist in another field. Now what they do is send you back to your doctor, perhaps with a suggested referral, which the doctor often doesn't act upon... because money is tight.

I'd start by getting all your medical records. All you have to do is go into your surgery with id like a passport or driving license and fill in a form asking all your records to be sent to you. When you get them, scrutinize them to see what each specialist has said and what they recommend. Your GP's will of had meetings about you and you can see what was said/suggested at those meetings.

Next time you see your doctor, reel off the list of specialists you've seen and tests you've had and then ask, "So what's the next step? where do we go from here?"
By doing that your saying, "we are in this together and I'm sure you want a diagnosis for me as much as I do"

It may be that you have something very rare but its more likely your just haven't' seen the right specialist yet.

I actually have all my medical notes due to the DWP deciding I no longer qualify for PIP. Judge whos doing my tribunal ordered them, and now that welfare rights have proof of what I was telling them, they say not only will I definitely get my award back, I will also be granted the higher level. Before I had the standard award.

I ask my GP all the time whats the next step..they always say its up to the pain clinic. Who wont give me a ****ing appointment

I actually think the problem might possibly be something called fibromyalgia. Having read up on it after someone on mumsnet said that sounded like my issue. Its basically, random unexplained pain..accompanied with fatigue and muscle aches. All of which suit me exactly.

Unfortunately,my GP says this is not a real illness Even though it is.