[Vicky.]

Originally Posted by Kizzy

That is so odd, was it deffo the full pill they gave you? I would've thought with the way it worked kidding the bod it's preggers that would solve it. What was the vit E suggested for?

I think it was, was just told it was the pill, then the minipill :S They don't know I am trying to find the source myself, I just keep telling them that I have reactions and stuff or don't trust the method any longer, and ask for the next one

Vitamin E was suggested as in my bloods it showed as severely aneamic and deficient in some vitamin, think it was E. They apparently had to order in the inection for that from germany, not sure on the reasons for that

[Kizzy]

Originally Posted by Vicky.

I think it was, was just told it was the pill, then the minipill :S They don't know I am trying to find the source myself, I just keep telling them that I have reactions and stuff or don't trust the method any longer, and ask for the next one

Vitamin E was suggested as in my bloods it showed as severely aneamic and deficient in some vitamin, think it was E. They apparently had to order in the inection for that from germany, not sure on the reasons for that

The mini pill works a different way, what were you on? Try get on yasmin if you can it's more expensive so they are more reluctant to prescribe it but it's good, if you're overweight or have high blood pressure they wont let you have it though.

Are you sure it wasn't A?
Have to go to work and on nights for a couple of days so if I don't answer not being rude, chat soon x

[Vicky.]

Originally Posted by Kizzy

The mini pill works a different way, what were you on? Try get on yasmin if you can it's more expensive so they are more reluctant to prescribe it but it's good, if you're overweight or have high blood pressure they wont let you have it though.

Are you sure it wasn't A?
Have to go to work and on nights for a couple of days so if I don't answer not being rude, chat soon x

It might have been A. Whatever it was had to be ordered in as apparently we don't stock it here

I am a bit overweight. Not massively so though.

Also sorry for hijacking your thread

[DemolitionRed]

Originally Posted by Vicky.

It might have been A. Whatever it was had to be ordered in as apparently we don't stock it here

I am a bit overweight. Not massively so though.

Also sorry for hijacking your thread

Sorry you're having to go through this but I honestly think you need to push your doctors to be more pro-active. GP's are basically ear nose and throat specialists who rely on specialists for anything more complex.

It used to be that you went to your GP, who sent you to a specialist, who went through a process of elimination before sending you on to a specialist in another field. Now what they do is send you back to your doctor, perhaps with a suggested referral, which the doctor often doesn't act upon... because money is tight.

I'd start by getting all your medical records. All you have to do is go into your surgery with id like a passport or driving license and fill in a form asking all your records to be sent to you. When you get them, scrutinize them to see what each specialist has said and what they recommend. Your GP's will of had meetings about you and you can see what was said/suggested at those meetings.

Next time you see your doctor, reel off the list of specialists you've seen and tests you've had and then ask, "So what's the next step? where do we go from here?"
By doing that your saying, "we are in this together and I'm sure you want a diagnosis for me as much as I do"

It may be that you have something very rare but its more likely your just haven't' seen the right specialist yet.

[Vicky.]

Originally Posted by DemolitionRed

Sorry you're having to go through this but I honestly think you need to push your doctors to be more pro-active. GP's are basically ear nose and throat specialists who rely on specialists for anything more complex.

It used to be that you went to your GP, who sent you to a specialist, who went through a process of elimination before sending you on to a specialist in another field. Now what they do is send you back to your doctor, perhaps with a suggested referral, which the doctor often doesn't act upon... because money is tight.

I'd start by getting all your medical records. All you have to do is go into your surgery with id like a passport or driving license and fill in a form asking all your records to be sent to you. When you get them, scrutinize them to see what each specialist has said and what they recommend. Your GP's will of had meetings about you and you can see what was said/suggested at those meetings.

Next time you see your doctor, reel off the list of specialists you've seen and tests you've had and then ask, "So what's the next step? where do we go from here?"
By doing that your saying, "we are in this together and I'm sure you want a diagnosis for me as much as I do"

It may be that you have something very rare but its more likely your just haven't' seen the right specialist yet.

I actually have all my medical notes due to the DWP deciding I no longer qualify for PIP. Judge whos doing my tribunal ordered them, and now that welfare rights have proof of what I was telling them, they say not only will I definitely get my award back, I will also be granted the higher level. Before I had the standard award.

I ask my GP all the time whats the next step..they always say its up to the pain clinic. Who wont give me a ****ing appointment

I actually think the problem might possibly be something called fibromyalgia. Having read up on it after someone on mumsnet said that sounded like my issue. Its basically, random unexplained pain..accompanied with fatigue and muscle aches. All of which suit me exactly.

Unfortunately,my GP says this is not a real illness Even though it is.

[AnnieK]

Originally Posted by Vicky.

I actually have all my medical notes due to the DWP deciding I no longer qualify for PIP. Judge whos doing my tribunal ordered them, and now that welfare rights have proof of what I was telling them, they say not only will I definitely get my award back, I will also be granted the higher level. Before I had the standard award.

I ask my GP all the time whats the next step..they always say its up to the pain clinic. Who wont give me a ****ing appointment

I actually think the problem might possibly be something called fibromyalgia. Having read up on it after someone on mumsnet said that sounded like my issue. Its basically, random unexplained pain..accompanied with fatigue and muscle aches. All of which suit me exactly.

Unfortunately,my GP says this is not a real illness Even though it is.

Fibromyalgia is definitely a real illness. I have a friend who suffers with it and at her worst, she actually has considered suicide a few tines as the pain is that chronic. She has recently overhauled her diet which has helped a bit but she now eats virtually a vegan diet and says its so boring, she also has b12 injections, anti inflammatories and trammies (although she says they're ****). She also has regular reflexology but doesnt think that helps. Took her years to be told thats what she had.....kept getting fobbed off as wasting docs time though. Hope you get it sorted Vic

[DemolitionRed]

Originally Posted by Vicky.

I actually have all my medical notes due to the DWP deciding I no longer qualify for PIP. Judge whos doing my tribunal ordered them, and now that welfare rights have proof of what I was telling them, they say not only will I definitely get my award back, I will also be granted the higher level. Before I had the standard award.

I ask my GP all the time whats the next step..they always say its up to the pain clinic. Who wont give me a ****ing appointment

I actually think the problem might possibly be something called fibromyalgia. Having read up on it after someone on mumsnet said that sounded like my issue. Its basically, random unexplained pain..accompanied with fatigue and muscle aches. All of which suit me exactly.

Unfortunately,my GP says this is not a real illness Even though it is.

Like others have said, Fibromyalgia is real but Fibromyalgia is a Latin word for 'muscle pain' and muscle pain can be many different illnesses. My sister was relieved when she was eventually told she had Fibromyalgia. The problem was, every time she went to the doctors with new symptoms they missed diagnosing her with a much more serious condition called 'spontaneous coronary artery dissection' a condition where the artery wall tears (SCAD is a rare condition btw that needs very specific tests). She'd already been diagnosed with hypermobility which people FM often have but hypermobility is also a pre-curser for other conditions, including SCAD. All the time she believed she had FM, she was attending pain clinics, changing her meds, upping her meds and having days when she couldn't get out of bed. She's now fully off painkillers and back to being fully mobile because she's taking the right meds for her now diagnosed condition.

I would caution on accepting a diagnosis of FM until you've had further tests for other things because once you get that diagnosis, all your going to get is pain management and doctors not taking you with the seriousness you deserve.

[Kizzy]

Originally Posted by Vicky.

It might have been A. Whatever it was had to be ordered in as apparently we don't stock it here

I am a bit overweight. Not massively so though.

Also sorry for hijacking your thread

Ask at reception for a copy of your last bloods tell them you need to take to a hospital appointment it will have the levels and whether they are high or low on it.
I'd ask about yasmin, no worries about the thread