[Kizzy]

Originally Posted by Vicky.

They aren't even treating the symptoms properly as the oramorph gives me a little bit of relief but only lasts like an hour, then I have to wait 3 hours for the next does (officially, as it happens I take it whenever necessary as its such a low dose I know I cannot OD on it and I would rather not be in pain when theres a way not to be, but this is how I end up with none for 3/4 days a week :S)

They originally diagnosed costocondritus. But then a specialist said that was a ridiculous diagnosis as the pain is in the wrong place to be that. Then they said it may be caused by gallstones, so took out my gallbladder and ****ed it up which left me in more pain than before as they had to open me back up to do a 'washout' and they had cut my bile duct too so I had to have huge drains out of my chest for 2 weeks which left me with new pain ontop of the old pain. Luckily the nerve damage caused by the drains is treated very effectively with the 600mg pregabin that they give me per day. I also since having gallbladder out, have had huge digestive issues and a very bad stomach ache on a regular basis. And feel sick near constantly, which is controlled by cyclizine pretty effectively, but not always.

And after this, nothing for 2 years. They did blood tests every so often which show inflammation but obviously..doesn't tell them where the inflammation is.

Recently they also tried a nerve block into my spine, which they called an 'intercostal muscle injection'...which was apparently meant to be a kind of long lasting anaesthetic if it worked. Which it did not, and left me again in more pain than before. 3 days after the injection I could not move at all and then after this I get random shooting pains up my spine. It did not relieve the pain at all..which was awful as I had been waiting for it for a year and looking forward to it as I had been lead to believe it was very very likely to be effective. I broke down in the GPs about this and they said that it was not likely to be effective, but it was done for diagnostic reasons so they can rule stuff out rather than expecting it to help me. So I was lied to, and again, what they tried to do left me worse off.

So yeah, pretty pathetic story so far. Everything they have tried to do to help me seems to have gone wrong (apparently them knacking up a keyhole gallbladder removal is really really rare, so just my luck they did mine wrong eh...) and what they are giving me to deal with the pain in the meantime does not even work properly.

Did they ever wonder if it was dietary Vicky?

[Vicky.]

Originally Posted by Kizzy

Did they ever wonder if it was dietary Vicky?

Yeah they have had me make changes, also wondered if it was vitamin deficiencies at one stage and made me have some injection, think it was vitamin e but not sure.

What I think it is, is hormonal. but they refuse to look into it. The reason I think this, is I have had this pain for years and year but it used to just be once a month or so so I could deal with it then. During both my pregnancies, it went away completely. And after giving birth to my son, it has been constant pain. So..the only thing that makes sense to me is its something to do with hormones. But no, they know best and refuse to even test. Why they think they know best when they have failed to find the source so far, I don't know.

[Kizzy]

Originally Posted by Vicky.

Yeah they have had me make changes, also wondered if it was vitamin deficiencies at one stage and made me have some injection, think it was vitamin e but not sure.

What I think it is, is hormonal. but they refuse to look into it. The reason I think this, is I have had this pain for years and year but it used to just be once a month or so so I could deal with it then. During both my pregnancies, it went away completely. And after giving birth to my son, it has been constant pain. So..the only thing that makes sense to me is its something to do with hormones. But no, they know best and refuse to even test. Why they think they know best when they have failed to find the source so far, I don't know.

If that was the case wouldn't the answer be to just go on the full dose pill?

[Vicky.]

Originally Posted by Kizzy

If that was the case wouldn't the answer be to just go on the full dose pill?

I have tried checking the hormonal stuff myself. I have been on both the pill, the mini pill, the injection and currently the implant. None of which has made any difference. Still think its hormonal in some way though, with it disappearing totally during pregnancy, and then going as bad as it is now right after giving birth

[Kizzy]

Originally Posted by Vicky.

I have tried checking the hormonal stuff myself. I have been on both the pill, the mini pill, the injection and currently the implant. None of which has made any difference. Still think its hormonal in some way though, with it disappearing totally during pregnancy, and then going as bad as it is now right after giving birth

That is so odd, was it deffo the full pill they gave you? I would've thought with the way it worked kidding the bod it's preggers that would solve it. What was the vit E suggested for?

[Vicky.]

Originally Posted by Kizzy

That is so odd, was it deffo the full pill they gave you? I would've thought with the way it worked kidding the bod it's preggers that would solve it. What was the vit E suggested for?

I think it was, was just told it was the pill, then the minipill :S They don't know I am trying to find the source myself, I just keep telling them that I have reactions and stuff or don't trust the method any longer, and ask for the next one

Vitamin E was suggested as in my bloods it showed as severely aneamic and deficient in some vitamin, think it was E. They apparently had to order in the inection for that from germany, not sure on the reasons for that

[Kizzy]

Originally Posted by Vicky.

I think it was, was just told it was the pill, then the minipill :S They don't know I am trying to find the source myself, I just keep telling them that I have reactions and stuff or don't trust the method any longer, and ask for the next one

Vitamin E was suggested as in my bloods it showed as severely aneamic and deficient in some vitamin, think it was E. They apparently had to order in the inection for that from germany, not sure on the reasons for that

The mini pill works a different way, what were you on? Try get on yasmin if you can it's more expensive so they are more reluctant to prescribe it but it's good, if you're overweight or have high blood pressure they wont let you have it though.

Are you sure it wasn't A?
Have to go to work and on nights for a couple of days so if I don't answer not being rude, chat soon x

[ChristmasNeeve]

Originally Posted by Vicky.

Yeah they have had me make changes, also wondered if it was vitamin deficiencies at one stage and made me have some injection, think it was vitamin e but not sure.

What I think it is, is hormonal. but they refuse to look into it. The reason I think this, is I have had this pain for years and year but it used to just be once a month or so so I could deal with it then. During both my pregnancies, it went away completely. And after giving birth to my son, it has been constant pain. So..the only thing that makes sense to me is its something to do with hormones. But no, they know best and refuse to even test. Why they think they know best when they have failed to find the source so far, I don't know.

That's really odd about it going away during pregnancies Vicky, would hormones cause chest pains though? They really should investigate that angle though, like try and find something that changed during pregnancy that could have stopped the pain

[Vicky.]

Originally Posted by Niamh.

That's really odd about it going away during pregnancies Vicky, would hormones cause chest pains though? They really should investigate that angle though, like try and find something that changed during pregnancy that could have stopped the pain

No idea. Its not chest pains as such, its a stabbing pain in the side of my ribs. Have more problems now after botched surgeries and such, but the original pain was a pain in the right side, like right down the side of the ribcage, sometimes going into my stomach area.

[ChristmasNeeve]

Originally Posted by Vicky.

No idea. Its not chest pains as such, its a stabbing pain in the side of my ribs. Have more problems now after botched surgeries and such, but the original pain was a pain in the right side, like right down the side of the ribcage, sometimes going into my stomach area.

sounds awful though, I can't believe they're not doing more to try and figure it out