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Lee. · 18-10-2014, 10:36 PM

Hello everybody

thanks for making this thread Caitlin, it's lovely to come back to!

So yeah, my boy has been given the all clear.. They can't detect any leukaemia at all, even using the most sensitive, molecular testing. I can't even begin to explain how it felt to receive the good news... It was either going to be this or a bone marrow transplant which would have meant relocating again to Glasgow for the treatment, then 6 months at home with no visitors and no leaving the house.. Relieved is an understatement. Obviously, he'll be monitored closely for the next 5 years, but for now I can say my son kicked cancers arse.. hard!

Ninastar · 18-10-2014, 10:39 PM

brilliant to see you online!

So happy for you!

Shaun · 18-10-2014, 10:41 PM

lee you babe

Lee. · 18-10-2014, 10:56 PM

Quote:

Originally Posted by Ninastar

brilliant to see you online!

So happy for you!

Quote:

Originally Posted by Shaun

lee you babe

Thanks

nice to be back!

Ninastar · 18-10-2014, 11:03 PM

what have you been doing since you found out? Is Samuel back at school?

Lee. · 18-10-2014, 11:13 PM

Quote:

Originally Posted by Ninastar

what have you been doing since you found out? Is Samuel back at school?

We'll I've been smiling a lot.. Plus enjoying little things like going to my own toilet and using my own shower etc. Oh and I've been drinking champagne a LOT!!

The schools are in holiday here at the moment but the nurse that was here the other day said that she'll arrange a meeting at the school as soon as they go back and make plans for him to return a few hours a day at first.. He's still got his Hickman line in his chest and his feeding tube in his nose, so gym and playtime etc will be a nono at first, plus his immune system is still up and down so the teachers have to be told how to recognise the first signs of infection and to phone us immediately.. All a bit daunting really, but it's another step towards normality

Shaun · 18-10-2014, 11:24 PM

How much school has he missed? Has he had friends around for visits & stuff?

Ithinkiloveyoutoo · 18-10-2014, 11:43 PM

Amazing news. This is beautiful. Congratulations.

Glenn. · 18-10-2014, 11:49 PM

Lee

Lee. · 19-10-2014, 12:48 AM

Quote:

Originally Posted by Shaun

How much school has he missed? Has he had friends around for visits & stuff?

He's not been at school since 24th April and because he's spent most of his time in isolation in hospital, the only people he's really seen are me and his dad.. He FaceTimed his friends from hospital though, so they've seen him ill and bald and with lots of tubes and machines.. It's still going to be a big step getting back to normal school life though.

Lee. · 19-10-2014, 12:50 AM

Quote:

Originally Posted by Ithinkiloveyoutoo

Amazing news. This is beautiful. Congratulations.

Thanks

Quote:

Originally Posted by Glenn

Lee

Glennnnnnnnnnn

Kizzy · 19-10-2014, 12:53 AM

Hi lee so pleased to catch you on, hugs to your brave boy and you

xx

Lee. · 19-10-2014, 12:55 AM

Thanks kizzy.. Nice to be back with a nice light heart

Kizzy · 19-10-2014, 12:58 AM

Quote:

Originally Posted by Lee.

Thanks kizzy.. Nice to be back with a nice light heart

I know! you must be bursting with happiness, we all are for you too

.... I can see one little boy receiving the entire catalogue of toys from argos this crimble

Lee. · 19-10-2014, 01:06 AM

This will be the best Christmas ever! Can't actually wait.. I've kept a positive vision in my head this whole time of Samuel sitting at Xmas dinner with a wee party hat on, sitting laughing with us

Kizzy · 19-10-2014, 01:09 AM

Quote:

Originally Posted by Lee.

This will be the best Christmas ever! Can't actually wait.. I've kept a positive vision in my head this whole time of Samuel sitting at Xmas dinner with a wee party hat on, sitting laughing with us

You've set me off again lee! Happy tears this time though

Ammi · 19-10-2014, 03:23 AM

Quote:

Originally Posted by Lee.

We'll I've been smiling a lot.. Plus enjoying little things like going to my own toilet and using my own shower etc. Oh and I've been drinking champagne a LOT!!

The schools are in holiday here at the moment but the nurse that was here the other day said that she'll arrange a meeting at the school as soon as they go back and make plans for him to return a few hours a day at first.. He's still got his Hickman line in his chest and his feeding tube in his nose, so gym and playtime etc will be a nono at first, plus his immune system is still up and down so the teachers have to be told how to recognise the first signs of infection and to phone us immediately.. All a bit daunting really, but it's another step towards normality

..

..hawwww Lee, what an incredible little guy you have but then he has a pretty great family as well...he's going to be like a movie star when he goes back to school...I know it all seems a little daunting as he's more vulnerable and susceptible to viruses etc as his body adjusts back and the precautions that have to be taken with that but it's not actually so bad..we've had a few children over the years who have also had leukaemia and his school will let you know whenever there is some illness in school that you need to be aware of and he might need some anti-biotics for his low immunity etc sometimes...but it really is no time at all before these precautions don't have to be taken and he's no longer any more vulnerable than any other child...it's also amazing how children 'catch up' so quickly with stuff they have missed at school..his classmates and friends will think that his Hickman line is just about the coolest thing ever..

...they'll all be fascinated by it because that's children...I'm so, so really happy for you and your whole family...when he's strong enough you all need to treat yourself to something to balance this awful time out...what a Christmas you'll all have, eh...that's if you're conscious of any of it in your wave of celebrations..

...just the best news ever, Lee..

...

Lee. · 19-10-2014, 11:46 AM

Thanks Ammi

thankfully, he had a teacher for an hour a day whilst in hospital so he's hopefully not fallen behind that much.
They're going to do another bone marrow test in 2 months and if it's still clear, they'll remove his Hickman, so hopefully it'll be gone by Christmas! I just want him back to normal as quickly as possible.. His hair and eyelashes are back.. His hair is a different colour, but he looks like a healthy child now rather than a cancer patient!