[Kizzy]

Originally Posted by RichardG

Only very recently, a couple of years ago I think when she was 18. She had the symptoms since 13/14 but the stupid doctors kept telling her it's all in her head and she's making it up, and had her on permanent antidepressants with therapists coming round to our house literally every week (which never made sense given that she was in a&e all the time getting her joints popped back into place, clearly something was physically wrong - sometimes we wonder why doctors get paid so much!!). Thankfully someone took her seriously eventually and got her diagnosed and all it took from him was one ct scan and a couple of days observation, nothing difficult, so it's crazy that she had to put up with years of being messed around!

Oh wow I thought you were going to say it was gradual since early childhood, maybe it's something that gradually worsens as we enter puberty?
Apparently the female hormone progestrogen aggravates the problem
I'm glad she is getting the assistance she needs now.